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Cystic Fibrosis News

News on Cystic Fibrosis continually updated from thousands of sources around the net.

14 hrs ago | F&M Magazine

Safety Industry Raises Over $200K at Charity Golf Tournament

Erogodyne held its 17th annual 65 Roses Golf Classic, bringing a series of leading manufacturers, and industrial activists from around the country to raise money for the Cystic Fibrosis Foundation.

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Related Topix: Medicine, Charitable Organizations, Cystic Fibrosis Foundation, Health, St. Paul, MN, Prior Lake, MN

Sun Jul 27, 2014

The Olympian

How will we pay for a $300,000 drug?

Developed by Vertex Pharmaceuticals, it is the first drug that attacks not just the symptoms but the underlying cause of cystic fibrosis, a genetic lung disease that usually kills victims by the time they reach their 40s.

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Related Topix: Vertex, Biotech, Vertex Pharmaceuticals, Medicine, Healthcare Industry, Health, Fibrosis, Genetics, Healthcare Law, Law

Sat Jul 26, 2014

Post and Courier

Jaycees host Summerville bar crawl for charity

The Summerville Junior Chamber of Commerce, better known as Jaycees, will again be hosting a bar crawl through downtown Summerville to raise money for the Cystic Fibrosis Foundation, South Carolina Chapter.

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Related Topix: Summerville, SC, Medicine, Health, Fibrosis

Wed Jul 23, 2014

Boston.com

Tests suggest limitations to Vertex's cystic fibrosis treatment

Investors and patients were exuberant last month when Vertex Pharmaceuticals released results from clinical trials showing that cystic fibrosis patients' lung function improved on an experimental two-drug regimen.

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Related Topix: Medicine, Health, Fibrosis, Vertex, Biotech, Vertex Pharmaceuticals, Healthcare Industry, Healthcare Law, Food and Drug Administration, Law

US News & World Report

Cystic Fibrosis Drug Combo May Be Less Effective Than Hoped

A powerful drug combo may not be as effective against cystic fibrosis as previously thought.

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Related Topix: Medicine, Health, Fibrosis, Cell Biology, Biology, Science, North Carolina, University of North Carolina Chapel Hill, Genetics

Tue Jul 22, 2014

Inside Self-Storage

Guardian Storage Marketing Director Raises Funds for Cystic Fibrosis Foundation

Christina Alvino, marketing manager for Guardian Storage, a self-storage operator with properties in Colorado and Pennsylvania, has been named as one of Pittsburgh's 50 Finest for 2014, a group that will raise money to benefit the Cystic Fibrosis Foundation .

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Related Topix: Medicine, Health, Fibrosis, Marketing, Charitable Organizations, Cystic Fibrosis Foundation, Non-Profit, Genetics

Mon Jul 21, 2014

The Times-Picayune

Grapes & Grain event offers fine wine and beer to benefit Cystic Fibrosis Foundation

With red or white, blush, bubbly, or brew, guests will make a toast to health August 1 at the Grapes & Grain Fine Wine and Craft Beer Tasting.

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Related Topix: Medicine, Health, Fibrosis, Wine, Drink, Charitable Organizations, Cystic Fibrosis Foundation, Beer

Canada.com

New cystic fibrosis drug shows great promise

CLOSEUP of new miracle CF drug that costs $300,000 a year in front of all the other drugs and inhalers etc.

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Related Topix: Medicine, Health, Fibrosis, Health Insurance, Genetics

Scientific American

Cystic Fibrosis Might Be Two Diseases

The CFTR protein forms a tunnel that crosses a cell's membrane , allowing chloride or bicarbonate ions to pass through.

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Related Topix: Medicine, Health, Fibrosis, Pancreatitis

Sat Jul 19, 2014

Marysville Globe

Tulalip Great Strides raises $44K for cystic fibrosis

More than 300 walkers turned out to help raise $44,000 and counting for the Cystic Fibrosis Foundation during the Tulalip Great Strides Walk July 12. Anna Lester, development manager for the Washington and Alaska chapter of CFF, explained that the top three teams in the Tulalip walk's sixth year generated nearly $20,000.

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Related Topix: Medicine, Health, Fibrosis, Charitable Organizations, Cystic Fibrosis Foundation

The Chronicle Herald

More energy, clearer airways: Cystic fibrosis drug working for Greenwood man

Tim Vallillee, who lives with a rare form of cystic fibrosis, says he has experienced new-found endurance and other huge health benefits since he started taking the drug Kalydeco in May. While that may not sound like a huge feat for many 46-year-old men, it is for Vallillee, who suffers from a rare form of cystic fibrosis.

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Related Topix: Medicine, Health, Fibrosis, North America, Canada, World News

Fri Jul 18, 2014

BioSpace

Vertex Pharmaceuticals Incorporated's $300,000 A Year Drug Is Denied, And Medicaid Patients Sue

LITTLE ROCK, Ark.-Vertex Pharmaceuticals Inc.'s $300,000-a-year cystic-fibrosis drug has sparked a legal battle here, where the state's Medicaid program is restricting access to the expensive therapy.

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Related Topix: Biotech, Vertex Pharmaceuticals, Medicine, Healthcare Industry, Little Rock, AR

Medical News

NC Senate plan to overhaul state Medicaid program draws fire from doctors and hospitals

The North Carolina plan was presented by state senators during a Wednesday meeting of the Senate Rules and Operations Committee.

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Related Topix: Medicaid, Health, North Carolina, Medicine, Fibrosis, California, California Government

ABC 27

10-month-old takes on Cystic Fibrosis and keeps smiling

Nothing can be more heartbreaking than seeing a child have to deal with a life-threatening illness.

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Related Topix: Medicine, Health

Thu Jul 17, 2014

Medical Daily

Cystic Fibrosis May Be 2 Diseases, Not Just One, Genetic Scientists Discover

Researchers believe cystic fibrosis should be considered two diseases, one that affects multiple organs including the lungs, and one that doesn't affect the lungs at all.

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Related Topix: Medicine, Health, Genetics

The Advocate

Swamp sounds take center stage at music festival

An audience of 6,000 is expected to attend the Swamp Pop Music Festival this weekend at the Lamar-Dixon Expo Center in Gonzales.

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Related Topix: Charitable Organizations, Cystic Fibrosis Foundation, Medicine, Health, Entertainment

Wed Jul 16, 2014

Wall Street Journal

A Costly Drug Is Denied, And Medicaid Takes Heat

LITTLE ROCK, Ark.-Vertex Pharmaceuticals Inc.'s $300,000-a-year cystic-fibrosis drug has sparked a legal battle here, where the state's Medicaid program is restricting access to the expensive therapy.

Comment?

Related Topix: Little Rock, AR, Medicine, Health, Fibrosis

Hispanic Business

Agile Nabs $1.5M NIH Grant for CF Therapy

The company's technology platform capitalizes on a chemical produced by the sea sponge to break up bacterial clumps called biofilms.

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Related Topix: Medicine, Health, Fibrosis

Mon Jul 14, 2014

Benzinga

Anthera Pharmaceuticals Announces Acquisition of Sollpura For...

Anthera Pharmaceuticals, Inc. today announced that it has acquired Sollpura , a novel investigational Pancreatic Enzyme Replacement Therapy from Eli Lilly and Company.

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Related Topix: Anthera Pharmaceuticals, Startups, Biotech, Medicine, Eli Lilly, Healthcare Industry, Health, Fibrosis, Nutrition, Healthcare Law, Law

Tyler Morning Telegraph

Teen fights for cystic fibrosis care, research

A Tyler teenager traveled to Washington, D.C., recently to advocate for drug research and health care for people with cystic fibrosis.

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Related Topix: Medicine, Health, Fibrosis, Family, Teenagers, Charitable Organizations, Cystic Fibrosis Foundation

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