Cystic Fibrosis News

This is the 44th year for the tournament, which is the longest-running charity golf tournament west of the Mississippi River.

To hear that your child has a potentially fatal condition is earth shattering news for any parent.

The 10-year-old Pennsylvania girl who fought for a lung transplant has a difficult journey ahead.

Ten minutes before the gates officially opened to the festival for the noon session, Harrisburg band Think Tank Trio was already playing, the sounds of their guitars and drums echoing throughout downtown Harrisburg to where hundreds gathered in a queue that snaked along from Second to Walnut to Third streets.

The event is a fundraiser for the Cystic Fibrosis Foundation, which works to find a cure for the disease and to improve the quality of life for those who have it.

A former Wayne County resident and a Michigan woman are busy in separate endeavors raising money for causes near and dear to their hearts.

The 10-year-old Pennsylvania girl who fought for a lung transplant has a difficult journey ahead.

The slide is important because it helps explain how Vertex will dominate cystic fibrosis therapy and one day generate $10 billion in annual sales.

In this May 30, 2013 file photo provided by the Murnaghan family, Sarah Murnaghan, center, celebrates the 100th day of her stay in Children's Hospital of Philadelphia with her father, Fran, left, and mother, Janet.

Welcome to the first post of Sports in the Community . This is the place where all of you in the St. Louis area can get your word out regarding any type of fundraising or efforts underway to help benefit a cause or better the community through sports.

Ten-year-old Sarah Murnaghan has been approved for a lung transplant after a controversial law kept her from being put on the donor list until she turned 12. Less than a week after U.S. District Judge Michael Baylson granted a temporary restraining order to make 10-year-old Sarah Murnaghan eligible for her much needed lung transplant, the ... (more)

Residents and friends of a local Twiggs County family took part in a fundraiser over the weekend to help find a cure for Cystic Fibrosis.

Ten-year-old Sarah Murnaghan, who has cystic fibrosis, is awaiting a lung transplant that could save her life, but the procedure is not a cure for her condition, and comes with significant risks, research shows.

Jerry Schabar of Elizabethtown enjoys a Troegenator during the 7th annual Harrisburg Brewers Fest held on Walnut Street in Harrisburg in 2010.

I say "one day" because the only box checked off on the Vertex cystic fibrosis roadmap to date is the small orange one representing about 2,000 patients with the relatively rare G551D mutation who benefit from Kalydeco monotherapy.

"There is so much stress and anxiety leading up to the transplant and then the physical aspect and the emotional aspect kicks in after the transplant because of rejection and all those other things that they deal with.

The Tennessee Chapter of the Cystic Fibrosis Foundation held its annual Wilson County Great Strides walk Saturday at Cumberland University's Nokes-Lasater Football Stadium.

We have often discussed how health care organizations now seem prone to diversion from their stated missions, often when money is the object.

Tristen Cureton, right, and his mom, Robin, are sitting on the couch reading one of his favorite books.

A NEW treatment for cystic fibrosis patients could dramatically improve the life of five-year-old Lena Buonaccorsi but it costs $300,000 a year.