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Cystic Fibrosis News

News on Cystic Fibrosis continually updated from thousands of sources around the net.

13 hrs ago | KSDK NewsChannel 5

Tickets on sale for Jack Buck Golf Classic

This is the 44th year for the tournament, which is the longest-running charity golf tournament west of the Mississippi River.

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Related Topix: Charitable Organizations, Cystic Fibrosis Foundation, Medicine, Health

Mon Jun 17, 2013

KOLO-TV Reno

Finding a Cure for Cystic Fibrosis

To hear that your child has a potentially fatal condition is earth shattering news for any parent.

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Related Topix: Medicine, Health, Fibrosis, Gardnerville, NV, Reno, NV

Sun Jun 16, 2013

WTOL-TV Toledo

New lungs buy time but don't cure cystic fibrosis

The 10-year-old Pennsylvania girl who fought for a lung transplant has a difficult journey ahead.

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Related Topix: Medicine, Health, Fibrosis, Kidney Cancer, Genetics

Sat Jun 15, 2013

PennLive.com

Harrisburg Brewers Fest celebrates 10th year and more than a million dollars raised for Cystic Fibrosis Foundation in its history

Ten minutes before the gates officially opened to the festival for the noon session, Harrisburg band Think Tank Trio was already playing, the sounds of their guitars and drums echoing throughout downtown Harrisburg to where hundreds gathered in a queue that snaked along from Second to Walnut to Third streets.

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Related Topix: Medicine, Health, Fibrosis, Charitable Organizations, Cystic Fibrosis Foundation, Harrisburg, PA, Entertainment

Bend Bulletin

Cystic fibrosis walk is today

The event is a fundraiser for the Cystic Fibrosis Foundation, which works to find a cure for the disease and to improve the quality of life for those who have it.

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Related Topix: Medicine, Health, Fibrosis

Fri Jun 14, 2013

Palladium-Item

Cyclist, paddler raise funds for causes

A former Wayne County resident and a Michigan woman are busy in separate endeavors raising money for causes near and dear to their hearts.

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Related Topix: Wayne County, IN, Boston, IN, Medicine, Health, Charitable Organizations, Cystic Fibrosis Foundation, Hagerstown, IN

Thu Jun 13, 2013

ChannelOne

New lungs buy time but don't cure cystic fibrosis

The 10-year-old Pennsylvania girl who fought for a lung transplant has a difficult journey ahead.

Comment?

Related Topix: Medicine, Health, Fibrosis, Kidney Cancer, Genetics

TheStreet.com

These Mutated Cystic Fibrosis Cells Are Worth Billions to Vertex Pharma

The slide is important because it helps explain how Vertex will dominate cystic fibrosis therapy and one day generate $10 billion in annual sales.

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Related Topix: Medicine, Health

Wed Jun 12, 2013

News Times

Pa. girl who took on donor rules gets adult lungs

In this May 30, 2013 file photo provided by the Murnaghan family, Sarah Murnaghan, center, celebrates the 100th day of her stay in Children's Hospital of Philadelphia with her father, Fran, left, and mother, Janet.

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Related Topix: Kidney Cancer, Health, Medicine, Fibrosis

KSDK NewsChannel 5

Sports in the Community: 44th Annual Jack Buck Classic

Welcome to the first post of Sports in the Community . This is the place where all of you in the St. Louis area can get your word out regarding any type of fundraising or efforts underway to help benefit a cause or better the community through sports.

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Related Topix: Medicine, Health, Charitable Organizations, Cystic Fibrosis Foundation

Medical Daily

To Get Sarah Murnaghan Her Life-Saving Lung, Hospital Had To Trick...

Ten-year-old Sarah Murnaghan has been approved for a lung transplant after a controversial law kept her from being put on the donor list until she turned 12. Less than a week after U.S. District Judge Michael Baylson granted a temporary restraining order to make 10-year-old Sarah Murnaghan eligible for her much needed lung transplant, the ... (more)

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Related Topix: Kidney Cancer, Health, Pop/Rock, The Call, Medicine, Fibrosis

13WMAZ.com

Helping to Find a Cure for Cystic Fibrosis

Residents and friends of a local Twiggs County family took part in a fundraiser over the weekend to help find a cure for Cystic Fibrosis.

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Related Topix: Medicine, Health, Fibrosis, Twiggs County, GA, Danville, GA, Macon, GA

LiveScience

Lung Transplants Controversial for Cystic Fibrosis Patients

Ten-year-old Sarah Murnaghan, who has cystic fibrosis, is awaiting a lung transplant that could save her life, but the procedure is not a cure for her condition, and comes with significant risks, research shows.

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Related Topix: Medicine, Health, Fibrosis, Kidney Cancer, Genetics

Tue Jun 11, 2013

PennLive.com

Harrisburg Brewers Fest is sold out

Jerry Schabar of Elizabethtown enjoys a Troegenator during the 7th annual Harrisburg Brewers Fest held on Walnut Street in Harrisburg in 2010.

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Related Topix: Charitable Organizations, Cystic Fibrosis Foundation, Medicine, Health, Entertainment

TheStreet.com

Vertex's Roadmap to $10 Billion in Cystic Fibrosis Drug Sales

I say "one day" because the only box checked off on the Vertex cystic fibrosis roadmap to date is the small orange one representing about 2,000 patients with the relatively rare G551D mutation who benefit from Kalydeco monotherapy.

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Related Topix: Medicine, Health, Fibrosis

Mon Jun 10, 2013

The Advocate

Founding a foundation

"There is so much stress and anxiety leading up to the transplant and then the physical aspect and the emotional aspect kicks in after the transplant because of rejection and all those other things that they deal with.

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Related Topix: Medicine, Health, Fibrosis, Non-Profit, New Orleans, LA, Tulane University

Lebanon Democrat

Cystic Fibrosis Foundation kicks off Great Strides walks in Lebanon

The Tennessee Chapter of the Cystic Fibrosis Foundation held its annual Wilson County Great Strides walk Saturday at Cumberland University's Nokes-Lasater Football Stadium.

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Related Topix: Medicine, Health, Fibrosis, Charitable Organizations, Cystic Fibrosis Foundation, Lebanon, TN, Wilson County, TN, Cumberland University

Health Care Renewal

Is the Cystic Fibrosis Foundation a Charity or a Venture Capital Firm?

We have often discussed how health care organizations now seem prone to diversion from their stated missions, often when money is the object.

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Related Topix: Medicine, Health, Fibrosis, Life, Charity , Charitable Organizations, Cystic Fibrosis Foundation, Genetics, Biotech, Vertex Pharmaceuticals, Healthcare Industry

Sun Jun 09, 2013

Carlsbad Current-Argus

Carlsbad toddler is poster child for cystic fibrosis bike ride

Tristen Cureton, right, and his mom, Robin, are sitting on the couch reading one of his favorite books.

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Related Topix: Medicine, Health, Fibrosis, Carlsbad, NM, Genetics, Albuquerque, NM

The Mercury

Health comes at a high price

A NEW treatment for cystic fibrosis patients could dramatically improve the life of five-year-old Lena Buonaccorsi but it costs $300,000 a year.

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Related Topix: Medicine, Health, Genetics, Biology, Science