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I hold Annette's book dear, having MS for 21 years. It is a descending condition disease for all at different rates.People with MS live longer now, but there is NO cure. There may be one let out from the hands of the FDA(a blocker, not a cure) in less than five years.It would stop it in it's track but not repair damage already done.
It is not nice being trapped in one's own body. Just blessings for Annette and those who really know or understand. P.S. Grew up in suburbs on the first run Mickey Mouse Club. |
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I also have MS, and I am a fan of Annette, and wsih her my very best.
She is in my prayers. I would like to know if you can buy a DVD of the book Annette wrote and it was a movie in 1995...Dream is a wish your heart makes: My story ? Thank you |
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I just wonder what success people have had using LOW DOSE NALTREXONE, and PROCARIN? My daughter is on this treatment now, for about a month, with no signs of improvement, but still there is hope. Our next step, is Hormonal/Vitamin/Mineral/Toxin testing, to rule-out trouble there. Also, LYME'S testing....the proper way, under strong magnification, should be on the list of things-to-do. Thanks for any feedback. Her primary problem is balance when walking, and the threat of decline.
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1 That is rediculous. Any that was so called "cured" after trying ojne of these snake oil treatments either had mild RRMS (relapsing-remitting) or did not have it at all. Primary progressive MS is unrelenting and does not respond to any treatments at all. You should know your facts about MS before posting something like this. |
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1 To Annette, you are an inspiration, your strength, and smile helps those of us fighting this disease push to continue. Thank you! You and your family are in my thoughts and prayers! |
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Nobody in this forum seems to react to my input about the improvements I got wit my Secondary Progressive MS through Umbilical Cord Stem Cells I got treated with in Mexico. The doctor who sent me there is American. I was just wondering if Annette ever did stem cells. I praise the Lord I did them in March 2007, and then in October the same year.
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Can you tell us more about this treatment-how the stem cells are harvested, how it is delivered to you and is it under physicians or hospital environment? What tests are needed during treatment, what conditions must it be given under, any physicians proofs of improvement you might have, short and long term followup of treatments? Published results of persons like you who have had this same treatment anywhere? Would sure appreciate it. |
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1 You're right.The euphoric effect of 'trying the new' predominates only temporarily after all these 'sells' of 'treatments' that clean the persons pocketbook and do no more long term, nor permanent. The school of thought that some learn from childhood on that all people with a disease must have something wrong or lacking in their diet, etc. is like the school blaming everything on a person being a sinner.So backwards. I am allergic to bee stings and have MS. So bee stings prove NOTHING. Having MS, the sheer force of the pain and temporary(although some become permanent and deep later on some)whip outs of the cognitive function are so bad one is often driven to odd thoughts and desperation not even KNOWN to them(in acting upon it)to do things like try 'snakeoils'. This is where STRONG family and other community support is yet lacking for these patients. Furthermore, palliative pain care is YET severly lacking in the US in hospital, clinical, home settings. This garbage, and that is what it is, about anyone 'being on pain killers' must be an addict is unfounded. The blocker(some would call it a 'cure', which it is not) for MS IS in the hands of clinical(not publicized-I found out through another researcher whom I can't devuldge)trials which are very rough on the participants. IF the economy has not affected the budget for these trials, PERHAPS the 'blocker'(stops MS in it's tracks it will, but not reverse damage already done)the public with MS will be able to obtain the 'medicine' for it in less than 4 or 5 years. It is way past due. Those that purport 'snakeoil's should be the focus of the government to silence for good, the sellers. False hope helps to hurry along destruction of individuals. Non-educated public is the fault of our educational institutions, the media, the government, and in many cases family not wanting to have responsible participation in their own's dilemna. |
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1 I also have a cousin with ms and he has been getting bee stings for over 20 years and he is still walking, driving and talking just like he didn't have ms. And yes, he was diagnosed with MS. What works for one may not work for another but don't knock what you never tried yourself or know anything about. |
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“LOCAL REPORTER DISCOVERS.....” Joined: Jul 9, 2008 Comments: 242 What? My birth town? ISP: Barberton, OH |
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1 That is ridiculous. Any that was so called "cured" after trying one of these snake oil treatments either had mild RRMS (relapsing-remitting) or did not have it at all. Primary progressive MS is unrelenting and does not respond to any treatments at all. You should know your facts about MS before posting something like this unquote. Agreed 100 percent. I am 60 years young and I have had MS since my senior year of high school. After a few years it went into remission until I was 40. Unfortunately I lived in in California at the time and MS is not seen as much as it is in the northern states (Where I lived most of my life ) When I was 51 my body became so useless and when I was diagnosed the doctors were surprised I had made it as long as I did without a doctor saying something was wrong. I told them most thought I was crazy since because I looked so good--blah. Haven't we heard that before. You see, if I went on that diet when I was 22 everyone would have thought I had been cured. MS acts so much differently in every person who has it and here in Ohio, it seems like you can't hardly turn around without running into another MS'er. I am very active as an MS Ambassador and talk with others nearly everyday. We are lucky to have so many good neurologists and clinics just for patients with MS in NE Ohio. Kent State does a lot of research and I have been in several studies. We gather for swimming, exercising, arts and trips all the time. Last January I joined the local YMCA and started swimming and exercising on my own. I now get around pretty good without my power chair--but no cure mind you. Two weeks ago I had a relapse and went back into the hospital for a week of steroids but I am back on my feet and even went golfing on Saturday. We have the only golf course in the nation set up for disabled people. Yoga and exercise is the best thing you can do for MS ( along with your shot of choice ) and the yoga book is available through the MS society. Yes exercising is hard--but ya got to do it. If you can't find the yoga book through your MS chapter let me know and I will try and check back to the forum from time to time. |
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1 I feel very strongly about these wonderfully pure and natural products...especially in this era of very odd immune system responses. Even though our diets are supposed to be complete in nutritional requirements, I find that with the physical, environmental and mental stresses placed on us in this hectic American lifestyle,along with the increased processed food choices and produce that is shipped from other parts of the continent to our stores, we are not necessarily getting the best of nutrition. More and more scientific research shows evidence of this. Anyway, I wish the very best to Annette and to all who are taking each day at a time with their MS. |
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