Hernia Mesh Patch Recall - FDA Warns of Death and Serious Healt...

Bob,
All mesh are bad, it is made out of chemicals, it definitely isn't good for human body. Tupperware doesn't belong in human bodies.
I dont understand, it seems you already had your mind made up so whats with the unnecessary questions and the statics. We know the proponants stastics. Also, did you not read that I didnt know my mesh was cause of seemingly unrelated problems but turns out it was. So those who you have talked to say they are fine. Well do any of them have endocrine problems, i.e. hypothyroid? Autoimmune disorder? Diabetes, vascular disease, hormonal issues, skin conditions, allergies they didnt have before? Hairloss? GI problems? Unexplained muscle pain? You would think all the above are unrelated to the mesh, but it CAN and does and many are oblivious to it.
We are already damaged, you are the one needs the luck so you don't join us after the mesh. Last advice, keep your insurance since you may need further care.

bob wrote:

It sounds like the majority of the people on here had the Kugel mesh thats been recalled. I have just called Dr Bruce Ramshaw (Fl) and the Hernia Ins of Florida and they both say they use mesh. I just dont understand if ALL mesh is bad why everyone uses it now. Again this is NOT to diminish any thing you guys have been through, but just like any operation there are risks associated to this. In regards to thinking I am somehow a part of the mesh co's I am just someone who is figuring out the best way and also giving myself the best odds of this not reoccuring and having chronic pain. Everyone I have spoken to who has had the mesh says there fine. Again there are always a percentage of people especially when there are upwards of 750,000 hernia operations a year that will have severe chronic pain. You guys cant say that ALL mesh is bad.

Did you know there are over 10 manufacturers getting sued for the mesh disaster? One of the company is Ethicon, J&J.

mesh removed wrote:

<quoted text>
Btw, doctors do lie and do hold important info from patients. I went to mine over and over to complain of my problems, but he denied for yrs that it was not the mesh, it turns out, it was the mesh.

I live in AZ I have mesh probs you know a good doctor I can talk to about removal I don't care about risks really just want good doctor to remove this crap out of me.

pajams wrote:

<quoted text>
I live in AZ I have mesh probs you know a good doctor I can talk to about removal I don't care about risks really just want good doctor to remove this crap out of me.

There is a doctor in NV that will,
http://www.ktvu.com/videos/news/special-repor... I watched this is it seems the MD knows what he is doing.

Bob, take a vacation to Toronto, Canada. Your hernias will be a walk in the park for this hospital. Shouldice clinic does a lot of americians and they are life long members. I am a mesh victim and to even consider the mesh at your age when there is other options available. You got lots of time to think about it, yours are small.

http://www.youtube.com/watch...

Those of you who have unlimited income or "Cadilac"insurance coverage: mesh removal is an option you can entertain with Dr.'s that excel in mesh removal.(many Dr.'s are listed in this forum) I personally have had an insurance nightmare and the mesh I had removed in late March of this year was an emergent situation so medicare covered it. I was told in 2011 that I was not a candidate for surgery, never the less I became medicare eligible after the first of the year and I found a Dr. in Round Rock, TX at Scott and White, who with a plastic surgeon, performed a meshectomy and reconstructed my abdominal wall. I have not requested their permission to post their names on the internet but I'm sure you can call the hospital and find out who they are. If not I'll will request their permission. Enough said about that; now I'll say to anyone contemplating surgery for a hernia repair, go with a repair that does not use mesh, or if mesh is needed make sure it is a biological mesh and not a synthetic mesh. There are too many unanswered questions and medical nightmares to counter the "reoccurance" statistics supporting synthetic mesh. As I posted a few weeks ago, my brother, who had a repair in 2005 and watched as my nightmare unfolded is now himself having trouble with the mesh implanted for his inguinal hernia repair.

A post from May 6th backed up what I have been saying all along for those of you now applying for SSDI. Write your congressperson. I did and it worked, I had my SSDI within 8 months. I also had a non healing soft tissue wound (fistula) from the mesh, this is an automatic qualifier if the tissue wound is greater than 6 months in duration. Do not hire a lawyer until your 2nd appeal. If you are between your 1st and 2nd write your congressperson.

pajams wrote:

<quoted text>
I live in AZ I have mesh probs you know a good doctor I can talk to about removal I don't care about risks really just want good doctor to remove this crap out of me.

I had to go to Cali to have it removed since no one would help me in AZ.

mbushey wrote:

Those of you who have unlimited income or "Cadilac"insurance coverage: mesh removal is an option you can entertain with Dr.'s that excel in mesh removal.(many Dr.'s are listed in this forum) I personally have had an insurance nightmare and the mesh I had removed in late March of this year was an emergent situation so medicare covered it. I was told in 2011 that I was not a candidate for surgery, never the less I became medicare eligible after the first of the year and I found a Dr. in Round Rock, TX at Scott and White, who with a plastic surgeon, performed a meshectomy and reconstructed my abdominal wall. I have not requested their permission to post their names on the internet but I'm sure you can call the hospital and find out who they are. If not I'll will request their permission. Enough said about that; now I'll say to anyone contemplating surgery for a hernia repair, go with a repair that does not use mesh, or if mesh is needed make sure it is a biological mesh and not a synthetic mesh. There are too many unanswered questions and medical nightmares to counter the "reoccurance" statistics supporting synthetic mesh. As I posted a few weeks ago, my brother, who had a repair in 2005 and watched as my nightmare unfolded is now himself having trouble with the mesh implanted for his inguinal hernia repair.

Glad to hear you got your mesh removed. When did you realize mesh was poisoning you? How are you now compared to when you did have the mesh.

mbushey wrote:

A post from May 6th backed up what I have been saying all along for those of you now applying for SSDI. Write your congressperson. I did and it worked, I had my SSDI within 8 months. I also had a non healing soft tissue wound (fistula) from the mesh, this is an automatic qualifier if the tissue wound is greater than 6 months in duration. Do not hire a lawyer until your 2nd appeal. If you are between your 1st and 2nd write your congressperson.

What did you write in the letter to your Congressperson?

mbushey wrote:

Those of you who have unlimited income or "Cadilac"insurance coverage: mesh removal is an option you can entertain with Dr.'s that excel in mesh removal.(many Dr.'s are listed in this forum) I personally have had an insurance nightmare and the mesh I had removed in late March of this year was an emergent situation so medicare covered it. I was told in 2011 that I was not a candidate for surgery, never the less I became medicare eligible after the first of the year and I found a Dr. in Round Rock, TX at Scott and White, who with a plastic surgeon, performed a meshectomy and reconstructed my abdominal wall. I have not requested their permission to post their names on the internet but I'm sure you can call the hospital and find out who they are. If not I'll will request their permission. Enough said about that; now I'll say to anyone contemplating surgery for a hernia repair, go with a repair that does not use mesh, or if mesh is needed make sure it is a biological mesh and not a synthetic mesh. There are too many unanswered questions and medical nightmares to counter the "reoccurance" statistics supporting synthetic mesh. As I posted a few weeks ago, my brother, who had a repair in 2005 and watched as my nightmare unfolded is now himself having trouble with the mesh implanted for his inguinal hernia repair.

Ive heard about Scott and White, its a great place with good doctors.

I went in for laparoscopic surgery for what I thought were ovarian cyst (after Doc told me I couldn't possibly have hernia because there was no visible bump). I wake up after surgery and suddenly I have two hernias, one on each side.(that they repaired because they saw no other problems, no cysts) 2 weeks after surgery, the pain in my right upper thigh came back in full force and with further researched I found that it too was another hernia. However, this hernia was the ONLY hernia that needed repair. THIS hernia was the one that caused all the problems prior to surgery. The docs DID NOT pay close enough attention to me and the many details I gave them surrounding my body issues. If they had they would have noticed the femoral hernia as well and FIXED THAT!! Instead I am now stuck with two scars and the right side NOW HAS A LARGE BUMP underneath which I believe is the hernia, back again. And yes, both sides have the MESH.
So my ? is, with all the other problems Im having with my doctors and such, is this mesh thing an actual issue, like law suit or what? It would be very appreciated to be informed of anything that could help me. Thanks for reading:)

Mesh Removed--The first mesh implant was in 2008, the mesh buckled; I had the second in summer of 2009,within 10 days I had a massive infection but was not able to have the mesh removed until the fall of 2009 because Work Comp was involved and they kept denying surgery. When the second mesh was removed the surgeon closed me up with no mesh and said the scar tissue would act as a mesh. Wrong; I had a hernia the size of a basketball with an incision 3 inches wide that split open in the spring of 2010. It took another 4 months for Work Comp to approve the 4th surgery and I had to use the same quack surgeon. By that time I not only had a wide open incision but I had developed 2 fistula's. The quack surgeon did an abdominal wall construction and then stupidly placed the same mesh in me that had caused all the infection from the second surgery in 2009. Because Work Comp was the insurance carrier they would not approve me for a 5th surgery and I had to suffer for over a year with that mesh tearing me up like a wire brush. When medicare kicked in last Jan I went right to my PCP who refered me to Scot and White for my 5th surgery. I will not name the mesh at this time because I signed my settlement papers. The next post I'll type out for word the letter I sent to senator John Corryn. I do not know anyone in politics and I am a democrat so this was not a case of "it's who you know". I can't join the ranks and say "congress dosn't do a thing" because--oops this man did.

Here is the letter I sent asking for a Congressional Inquiry.

Dear Senator John Cornyn,
I want to formally place a Congressional Inquiry for my Social Security Disability claim that is at the Reconsideration Level-Disability Determination Services.

I have an extensive injury now requiring a third surgery this year with a large non healing wound of three month duration that has prevented substantial gainful activity for 12 months and now longer. I am a productive citizen that obtained a registered nursing license at the age of 50 and would rather continue to contribute to society. However, due to its nature, my injury prevents the current attainment of even a sedentary nursing position and precludes other work as well. This is a lifetime injury that will only worsen with time.

I thank you for considering my plea of a
congressional Inquiry. Please contact me if you need further further information. I thank you in advance for your attention to this matter.

Formally,

That's it-- I first applied for SSDI on 1-28-10, I wrote this letter in June of 2010. Senator Cornyns secretary sent me a privacy release form to sign and asked for a brief description to the nature of my injury. I had my SSDI by October of 2010.

Use the format, you have my permission.
Good luck to whoever uses it and I hope your congressperson will respond as mine did.(I live in TX)(Work Comp sucks in TX)

mbushey wrote:

Here is the letter I sent asking for a Congressional Inquiry.
Dear Senator John Cornyn,
I want to formally place a Congressional Inquiry for my Social Security Disability claim that is at the Reconsideration Level-Disability Determination Services.
I have an extensive injury now requiring a third surgery this year with a large non healing wound of three month duration that has prevented substantial gainful activity for 12 months and now longer. I am a productive citizen that obtained a registered nursing license at the age of 50 and would rather continue to contribute to society. However, due to its nature, my injury prevents the current attainment of even a sedentary nursing position and precludes other work as well. This is a lifetime injury that will only worsen with time.
I thank you for considering my plea of a
congressional Inquiry. Please contact me if you need further further information. I thank you in advance for your attention to this matter.
Formally,
That's it-- I first applied for SSDI on 1-28-10, I wrote this letter in June of 2010. Senator Cornyns secretary sent me a privacy release form to sign and asked for a brief description to the nature of my injury. I had my SSDI by October of 2010.
Use the format, you have my permission.
Good luck to whoever uses it and I hope your congressperson will respond as mine did.(I live in TX)(Work Comp sucks in TX)

I admire your inner strength. As a nurse and someone who knows the human anatomy and physiology you are a great advocate for yourself. You know what the mesh has done to you and you have the medical background to back that up. Alot of other people do not have medical education but that does not mean they do not know what is going on inside their own bodies, no doubt about it. I just wonder, did your Surgeon try to brush you aside and tell you it was NOT the mesh causing your health problems even though you knew it was. Im not trying to sound sarcastic, Im very sincere.

I just go finished listening to a conversation between my husband and his surgeon. The Surgeon said that the Mesh was fractured, the lining was breaking off. it was only in him for 9 weeks! It was as hard as a rock and was actually breaking. I can only imagine what other people are going through with longer term mesh! he still has another type in him,and he is still very ill and wont be able to get it out until December 2012. After watching the News story on the Las Vegas Surgeon, now I actually have a visual of what they look like. I cannot believe for one instant that Surgeons are telling their patients that "the mesh is not the problem"! This makes me sick! Its like chicken wire!! How chicken wire wads up or that wire mesh used for keeping birds off the strawberry plants. Thats what it reminds me of.Not to mention the plastics chemicals used to make it. Im working very hard for my husbands recovery, Ill die fighting for him. But I dont know if he can win his own battle and now that Ive seen the mesh in those jars! Why not just give patients a cyanide tablet and tell them to bite it when they get really sick because its the ONLY REAL relief they will ever get. I dont care what it takes, how long it takes, Im going to keep learning and using what I learn to help my husband. He would do no less if it were me. In fact, he would be throwing some pretty heavy punches at the people responsible for harming me. Literally physical punches.

Patty, no I did not know what the mesh had done to me until I found the, "Nat. Meshoma Foundation", info,this forum, and other forums like it. Yes, I have had a couple of doctors tell me it was not the mesh. I thought I was going crazy until I typed in the word "meshoma" last November. There are a lot of very informed people who contribute on this site. I've learned a lot from them and reading the links they provide. All I have is my experience, strength, and hope; plus a strong desire to advise people to research before they make a decision to have a hernia repaired.

Bob from Ft. Lauderdale,Fl. I just catching up the latest post. Been down sick. Henia mesh problem related. Are you new to this topic, of hernia surgery and surgeon wants to expose your body parts to it? Ok I see you've asked ???????'s. Do your research man! Start by looking up what POLYPROPYLENE is- Good reading Wikipedia Free Enclopedia. But to give you a quick leason. How far do you live from any fishing areas????. Why look in the water, see all the broken fishin line? That is Polypropylene-multifillament,m onofilament. Ok fishline, castnets, the likes, inside your car all the plastic on doors dash etc... all plastic around you in one way or other is the same, plastic polypropylene that gets made into hernia surgery mesh. I know in Fl. their manufactures down their that make the mesh, go call one see if you can take a see of the place. Use to work in one. Any way, getting back to fishin , ok just think of all the broken fishline, old castnets etc... now think about it being inside a fish, seabirds,sea mammals guts, all balled up? Get the picture? Will its close to what this mesh does to people.

Does anyone know a good surgeon down in my area that does a no mesh repair? South Florida. I cant travel to Canada or NV. Also - has anyone heard of bio mesh? If so, is it good or bad?

Thanks

bob wrote:

Does anyone know a good surgeon down in my area that does a no mesh repair? South Florida. I cant travel to Canada or NV. Also - has anyone heard of bio mesh? If so, is it good or bad?
Thanks

Are far are you from Sarasota Fl.? Aren't you down around Naples? I not sure about this Doc spelling he's in Sarasota Doctor YUNIS but I think he has a web called Hernia MD I think that he is the right one, I'll check.