PLEVA, Mucha-Habberman's disease

i have recently been to a derm. who thinks i might have PLEVA- also known as Mucha-Habberman's disease. Let me tell you- it pisses me off more than i can explain, i don't even feel comfortable taking my shirt off in front of my girlfriend. Can anyone tell me what the C U R E is for this annoyance???

I looked up yr skin condition, the following treatments were-Oral Antibiotics such as-Tetracycline or Erythromycin. or Ultraviolet light therapy or Topical corticosteroids.good luck

Came down with PLEVA over 5 years ago. At the worst I was covered with open sores and ate ibuprofin to deal with the itch (other itch medication put me to sleep). Although I went to derms, wasn't diagnosed until a little over a year ago. Now it has such a hold on my system I have taken 3 Ethrymycin a day for over a year and use steroid ointment. Had a small breakout this winter and am looking forward to getting some natural sun which seems to be the most help. You are right! It sucks!

I've had psoriasis since 2nd grade (now 45) and just got it under control again within the last couple of years with Enbrel. Now, I've just been diagnosed with PLEVA. It's extremely painful...burns and itches. I've been put on Tetracycline and topical creams, but it is still spreading. Although I have it all over, my lower legs are terrible. It definitely sucks!

I was diagnosed with Mucha-Habberman's disease when I was 2 yrs old when a biopsy was done. I have never itched or burned. It's just ugly. The older I get (now 31), the less I have it. I have never used anything except Neosporin on occasion. hmmmm....

Wondering how everyone else thinks they contracted PLEVA. Had a friend who got a fungus infection from a tanning bed. Thought this might be a possibility of how I got PLEVA. Now I only use a stand up unit to tan. Lived in a mobile home court that had issues with our drinking water that came from ponds, think this may be another source. Have read that the cause may be a micro organism and PLEVA seems to be most common in those with "allergic" systems. My PLEVA began only months after being diagnosed with indoor and outdoor allergies and food sensitivities. Anyone else have an allergic system? Feel that being on ethromycin shortens the life cycle of each outbreak, but I still get PLEVA.

I was diagnosed 2 years ago,I was covered from head to toe.I had over 600 spots on my body and no one could diagnose me.I finally found a brilliant dermatologist who told me I had Pleva.She put me on Methotrexate(oral Chemotherapy) and it completely healed up.But I can't stop taking it or I start to break out again very rapidly.I don't want to rely on meds for the rest of my life, but when you don't know what causes something you can't cure it.There are so many theories.This stuff is really frustating.Someone please figure this disease out.

i had pleva untill now anyone can tell me what is the effective cure for pleva which is cheaper not too much expensive....thanks in advance for ur help..

I have had this disease for 6 years now-took a year to diganois. Have gone thru many different treatment. Methotrexate is the only thing that seems to do any good. fairly inexpensive pills but they make me sick each time I take them. I want this to disappear!!!! Seems to b e worse in the warmer months than colder months. Perhaps an allergic reaction?

I was diagnosed with PLEVA as a reaction to contracting Hep B (I was high risk for Hep B working in a Medical Facility and also not being told that you need a vaccination for Hep B for college). I also have an indoor/outdoor accute allergies. I have had PLEVA for going on four years. I tried topical ointments, tanning, pills. What helps me is natural sunlight which is also cancerous. I would like to try Methotrexate. Especially if it will clear me up, and I would take it for the rest of my life not to have to deal with this disease any more!! I have lost so much self confidence because of it. My husband loves me, but I also want him to LOVE the LOOK of me too disease free!!

My son, who is 12 years was diagnosed with Pleva yesterday. He was dx with chickenpox almost 3 weeks ago and when I took him back to the dr, he then said it is Pleva instead. I also have symptoms of this disease. My dr thought is was a bacterial infection, viral infection or fungal. All cultures were negative. Then her conclusion was a bug bite. The the exterminator that I had come out stated that he found no bugs at all. A bx was done, and the preliminary said that it is a bug bite. My son was just started on Erethromycin. Is it normal for two people in the same household to have this at the same time? Any suggestions?

Please help me I've just been diognosed, I can't find any help. I just itch like hell.

Hi Pam, interesting, I live in a mobile home coure that I SWEAR their is something wrong with the water in this city. Its a large city in So Calif, but makes NO DIFF. I also agree...IT SUCKS. On the fungus thery....weirder....my cat came out with a fungus rash that was misdiagnosed as "kitty acne" within days of each other..sounds crazy doesn't it....but so is PLEVA.
DID I mention it SUCKS for lack of a better word. I have it on my arms and one leg.....Im on eurothemiacin, bactroban cream and so far thats it, its been 5 mos and I can imagine waiting longer to clear up. Its embarrassing to say the least. Good luck everyone else and my prayers are with you all.

Pam wrote:

Wondering how everyone else thinks they contracted PLEVA. Had a friend who got a fungus infection from a tanning bed. Thought this might be a possibility of how I got PLEVA. Now I only use a stand up unit to tan. Lived in a mobile home court that had issues with our drinking water that came from ponds, think this may be another source. Have read that the cause may be a micro organism and PLEVA seems to be most common in those with "allergic" systems. My PLEVA began only months after being diagnosed with indoor and outdoor allergies and food sensitivities. Anyone else have an allergic system? Feel that being on ethromycin shortens the life cycle of each outbreak, but I still get PLEVA.

i had pleva for about 4 years now.. and almost 5.. i really need help. I dont know what to do anymore, ive took pills that are 1500miligram and so many treatment, if anyone finds that will help it cure or atleast keep it low. Please let me know, i really need support on how to cure this things. I am beginning to look not very attractive now. I am so emberassed and cant wear short sleeve or shorts. Its really painful and emberassing. Please HELP.. I have been begging for it to go away. Ive had it since i was 5th grade and now 9th. Please help. All i wish for my birthday and christmast that this thing will go away. I am too young, and dont want to have this...='(

nancy wrote:

i had pleva untill now anyone can tell me what is the effective cure for pleva which is cheaper not too much expensive....thanks in advance for ur help..

Nancy, ive had it since I was 15yrs old, now 44 and the tanning bed works the best, and in Minnesota we do not get the sun like you do, but when the summer arrives mine goes away. medicine never realy worked so I quit years ago.

Diagnosed when I was 15 yrs old, now 44 . was prescribed tetracycline which made my stomach upset and seemed to help at the time but now I think it was just running its course, the breakouts would last the same with or without it so i quit,, and started to realize the tanning bed and sunlight do wonders rarely even break out in the summer if im out with my shirt off early on.

Diagnosed last week with PLEVA.I am in my early 50's and have had sensitive skin all my life. Have been searching for PLEVA info since. This site is the best I have come across. My face and scalp is now the only area not covered in this horrid rash. All at different stages on the body. I was lucky, had seen my doctor only twice before biopsy's were done. Now on Erythomycin and using Calamine lotion for the itch{its the only thing in the last 3 months that seems to work, have tried many creams without this level of success} Time will tell if the medication works{don't hold out much hope as I have had a new outbreak since starting the Erythomycin}. Will try limited sunshine as my next step. Thank-you all for sharing your experience's and hopefully this site will help others as it has me. Regards to all Genene.

See the two earlier posts by Pam to follow my story. Just returned from the CLEVELAND CLINIC regarding my Pleva and allergies. Saw Dr. Himrod and Dr. Babb-Tarbox. Have been on Erythromycin 3 pills per day for two years. Tried light therapy but they couldn't give me a very big dose because I kept burning. Erthromycin, light therapy, steroid cream and natural sunlight have all helped shorten the life cycle and # of lesions, but I have had Pleva almost constantly for 7 years! It is unusual to have it so much according to them. Dr. Himrod said he prefers to use Doxycycline for Pleva and Diflucan for the yeast infections that will probably accompany the use of antibiotics. He mentioned something about yeast being tied to Pleva, I never heard that before. The Doctors seemed very knowledgable and concerned about figuring Pleva out. WISH somebody would!

Pam, I am really interested in your post... I believe my PLEVA is a result of taking medication that contained red yeast - it has happened twice and in both instances I have taken cholesterol reducing drugs that contained yeast... I was intrigued by your posting... did your doctor say that PLEVA can be triggered by an allergic reaction to yeast?

The consultation at the Cleveland Clinic was $325, and extremely thorough. They were dermatologists, yet spent 45 minutes with me inquiring about and discussing every aspect of my medical history in depth, not just the Pleva. Dr. Hamrod asked how frequently I got yeast infections. He said Pleva is an auto-immune disease and that yeast affects it. Sorry, I didn't get his entire sentence. He wants me to take the diflucan once a week for as long as I am on the Doxy. whether or not the Doxy. causes me to have yeast infections more frequently than normal or not. Definitely worth looking into more. I read not too long ago that Germany is beginning to study Pleva. Has anyone else seen this information?