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zack
Brooklyn, NY
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No cat scan but i had an xray of all me teeth before i noticed the first spot, along with alot of work done on my teeth.. I always considered this is linked with something that involves what the dentist used on me that year in 2003. I have lost most of the hair on my head. Most of my beard. spots throughout my arms , legs, chest, and lost some of my eyebrows and a bit of my lashes. If i can maintain to keep my eyebrows and lashes i will cope with this issue for the rest of my life. but if i lose these then i would look really OFF.
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hello
Sparks, NV
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i have noticed same problem from last few days but after reading that its gonna be worst i am so scared.....
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Eddie
Corona, NY
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hello wrote: i have noticed same problem from last few days but after reading that its gonna be worst i am so scared..... It might not get too bad, there are some bad cases on here, but there are some mild cases too.
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Rob
London, UK
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Hi guys, I have posted comments on this board quite a few times over the last few years. I am delighted to say that pretty much all the hair I lost on my beard has now grown back fully into dark coarse hair! I noticed I had alopecia around October 2009 and now it’s February 2012. It has been an emotional rollercoaster for me and I totally understand what you are all going through. After experiencing Alopecia for the past 2.5 years and having taken a load of medication such as steroids lotions and tablets I honestly think there is no treatment out there at the moment that will stop the course of this condition, your body has to heal itself! I met another guy at my gym that had it much worse than me and almost all the hair he lost on his head, beard and eyebrows has grown back after 3 years. There is hope, stay positive! Best Wishes, Rob
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Eddie
Corona, NY
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Rob wrote: Hi guys, I have posted comments on this board quite a few times over the last few years. I am delighted to say that pretty much all the hair I lost on my beard has now grown back fully into dark coarse hair! I noticed I had alopecia around October 2009 and now it’s February 2012. It has been an emotional rollercoaster for me and I totally understand what you are all going through. After experiencing Alopecia for the past 2.5 years and having taken a load of medication such as steroids lotions and tablets I honestly think there is no treatment out there at the moment that will stop the course of this condition, your body has to heal itself! I met another guy at my gym that had it much worse than me and almost all the hair he lost on his head, beard and eyebrows has grown back after 3 years. There is hope, stay positive! Best Wishes, Rob Thanks for the positive update Rob. I've had this exactly a year now, my original bald patch has also completely grown back. And now the second spot I had is growing back as well.(starting with thick white hairs like the 1st spot) There is hope!
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Jet
Melbourne, Australia
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Great to hear Rob and Eddie. Thank you for posting and giving the rest of us hope. I think you're right Rob. All treatments are aimed at growing hair but none of them stop the progression of the disorder and treat the cause.That's because the cause is unknown. The immune system attacks the hair thinking it's a foreign invader and nobody knows why or how to stop it. We have just have to be patient and wait for the immune system to stop attacking it. The time it takes to do that is unknown and unpredictable. I have an inch circular patch now running from my left chin to under my jaw. I have some white terminal hair regrowth and some fine white hair regrowth filling the entire area. Only a couple of hairs have turned black at this stage. If I dye the hair there it looks cosmetically acceptable although a little diffuse. I'm in my 10th month now and I hope it starts coming in thicker and blacker soon but it could still take another year or 2. Patience isn't my strongest virtue but I don't have much choice. I'm hopeful that it will return in time and reading the above 2 comments is reassuring. Thanks again.
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Eddie
Corona, NY
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Jet wrote: Great to hear Rob and Eddie. Thank you for posting and giving the rest of us hope. I think you're right Rob. All treatments are aimed at growing hair but none of them stop the progression of the disorder and treat the cause.That's because the cause is unknown. The immune system attacks the hair thinking it's a foreign invader and nobody knows why or how to stop it. We have just have to be patient and wait for the immune system to stop attacking it. The time it takes to do that is unknown and unpredictable. I have an inch circular patch now running from my left chin to under my jaw. I have some white terminal hair regrowth and some fine white hair regrowth filling the entire area. Only a couple of hairs have turned black at this stage. If I dye the hair there it looks cosmetically acceptable although a little diffuse. I'm in my 10th month now and I hope it starts coming in thicker and blacker soon but it could still take another year or 2. Patience isn't my strongest virtue but I don't have much choice. I'm hopeful that it will return in time and reading the above 2 comments is reassuring. Thanks again. White hair is always a good sign. And yes I agree all the treatments are BS, none work, even when people think its working, its just the hair growing back naturally. I never tried the steroids because of side effects and I;ve actually read it can make things worse. All the doctors/derms didn't care, they just immediately wanted to give me steroids, no questions asked. It tends to grow back slowly. I did try natural remedies such as onion juice & aloe vera, but none of that worked, it grew back when it wanted to months later on its own.
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Rick from frankston
Box Hill, Australia
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Hi all, long time no chat, me now had it 12 mths, as stated earlier partner booted me out, by that stage November 2011 had no beard and a circle on head, now have six circles on head, but stress gone. What does that mean I hear u say, lol, my face is 95% grown but white at this stage and thickening, so hope goes dark, hair on head the same but hope it will follow the face. Had to grow hair little longer and cover spots, just hope hair on head doesn't completely go. Will give u up dates
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FYI
London, UK
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For everybody's information: There no cure for this, its an autoimmune system thing, not any kind of infection or disease, it works i cycles it will come and go and is stress induced. Your local Doctor GP wont know what to make of it, I spoke with specialists dealing with all the ranges of Alopecia and the said that facial patches wont be taken seriosuly only severe ones like Alopecia Universal or the ones that appear on ur scalp.
Advise: Try and chillax its the only cure. And stimulate blood flow in that area as the body induces this by restriciting lood flow to that part thus weakening the hair folicles.
Everything will be ok.
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Eddie
Corona, NY
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FYI wrote: For everybody's information: There no cure for this, its an autoimmune system thing, not any kind of infection or disease, it works i cycles it will come and go and is stress induced. Your local Doctor GP wont know what to make of it, I spoke with specialists dealing with all the ranges of Alopecia and the said that facial patches wont be taken seriosuly only severe ones like Alopecia Universal or the ones that appear on ur scalp. Advise: Try and chillax its the only cure. And stimulate blood flow in that area as the body induces this by restriciting lood flow to that part thus weakening the hair folicles. Everything will be ok. I agree with most of what you said, except that this is stress related. I got this at a time in my life when my stress was relatively low, I have had far more stressful times in my life. I think saying its stress related is a cop out because doctors don't really know the cause or cure. I'm sure there are some people that may have had stress at the time, but I think that's coincidental. If this were stress related I think FAR more people would have it, especially here in NYC where stress is at an all time high. I think its triggered by something, in my case I got this patch while I was dealing with food poisoning, now we all know when the body fights off food poisoning the immune system has to fight real hard. So I think there was a connection there.
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Jet
Melbourne, Australia
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Eddie wrote: <quoted text> I agree with most of what you said, except that this is stress related. I got this at a time in my life when my stress was relatively low, I have had far more stressful times in my life. I think saying its stress related is a cop out because doctors don't really know the cause or cure. I'm sure there are some people that may have had stress at the time, but I think that's coincidental. If this were stress related I think FAR more people would have it, especially here in NYC where stress is at an all time high. I think its triggered by something, in my case I got this patch while I was dealing with food poisoning, now we all know when the body fights off food poisoning the immune system has to fight real hard. So I think there was a connection there. I agree Eddie. Stress is not the cause but it can make it worse, apparently. When you consider that children get this disorder on their scalps, you would hardly think that the life of a child is stressful. It's been awhile since I was a child but I don't recall being too stressed out in my pursuit of candy, bike riding and playing outside with the neighbourhood children. You'd be doing it pretty tough if life was stressful at 10 years of age. But you only have to google this disorder to see that children that young and even younger suffer from Alopecia areata. For me it developed after I got the flu. Since then I've developed an allergy which means that my nose is constantly blocked and it was then that my beard hair started to fall out. Research indicates that people with this disorder tend to have a predisposition to allergies and other autoimmune diseases. I think in my case the virus I caught sent my immune system out of balance. This is all speculative of course, nobody really knows. There is also a connection to gluten intolerance and alopecia areata. The possible causes are many but most of us would be susceptable to allergies and other autoimmune diseases. I think balancing or modulating the immune response is vital in solving this disorder. Unfortunately most treatments such as steroids suppress the immune system which while that can allow hair to grow it also makes you vulnerable to catching other serious diseases, which could obviously make matters worse in the long run.
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zack
Brooklyn, NY
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anyone hear from Peter lately he mentioned he was working on this new treatment but i havent heard from him since.
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Eddie
Corona, NY
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zack wrote: anyone hear from Peter lately he mentioned he was working on this new treatment but i havent heard from him since. Nope, he asked for my address saying he was going to send the cream, but after I gave it to him I never heard from him again. Makes me wonder.
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Eddie
Corona, NY
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PS: That was in early december ^
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Rick from frankston
Box Hill, Australia
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Same here Eddie, I emailed him
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kenny from memphistn
United States
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im so sick of this spots cant goto school cant work with out a durag or hat cant go ti funerals or church cant do nothing to better myself becuz im too ashamed i feel like dying
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Thejsk
Chicago, IL
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I used neospprin and it went away.
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Jet
Melbourne, Australia
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Thejsk, How long did you have your bald patch and how big was it? Then once you started using Neosporin how long did it take for the patch to grow hair back? How often did you apply it? Please give more information. Thank you.
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Zack
Brooklyn, NY
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i emailed him several times and no response . at any rate, i have reached the second stage of this disease , Alopecia universalis . I have practically lost all the hair on my head now . THe hairs on my arms are gone. Facial just about all gone. The only thing left is the hair on my legs . The most important hair i am trying to salvage is my eyebrow and eyelashes. The rest i can live without. I gave up on everything i was using in the past and just waved the white flag.
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Rick from frankston
Hawthorn, Australia
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Zack, when did it first start for u? I lost all hair on face, started march last year and have few patched on head, and can feel bits of hair fall out each day. Hair on face 90% returned even though it's white at this stage. I just hope that, as I have changed my environment ie less stress it will all return.
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