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This is a sad and terrible story. I hope and pray
Jani gets better and will be able to function in life. She is blessed to have such wonderful parents. |
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I have no doubt whatsoever this is a very sick child. I'm not condemming the parents for having children-most of us have preexisting medical conditions in all our families. Maybe a mental health expert or someone who knows of a long term care facility that would be able to help her and her family will read this article and offer some assistance to them. Makes me thankful my special needs child isn't stricken with mental illness-after reading this article cerebral palsy seems minor in comparison.
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She is beautiful, and damaged.
Kudos to her parents, for trying to do all they can, to keep this family intact. I wish them well. |
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Is it possible that this child has been misdiagnosed and actually has an autism spectrum disorder? The frequent rage reactions, hand-flapping, and precocious intelligence suggest that she might have some form of autism. The article never said whether this girl's doctors considered that diagnosis and ruled it out.
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My husband and I were "in the system" some years ago, attempting to get help for our son, whose behavior baffled nearly every mental health professional we found. There is a huge dearth of resources out there...and, meanwhile, much of our society is terribly under-informed about psychological conditions in children. Ninety percent of the people we met (yes, sometimes including our families) observed our son's behavior and chalked it up to ineffective parenting.(Believe me, if there had been someone out there who could have parented our son better, we were ready to hand him over--so great was our frustration and despair.)
Posters, please don't condemn this family for the illness of their child. |
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This is probably the most heartbreaking thing I've ever read. Please Illinois or U.S. government, help this family. Help this poor child. :( God bless them and keep them.
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Don't lawyers take probono cases just because they are interesting, where are the highly skilled doctors? Where are the support systems? This case to me is the perfect example of how we treat the weakest, it shows a complete lack of moral fiber.
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Since: Mar 09
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My 24 year old daughter with CP says the same thing! |
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Since: Mar 09
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I hope you were eventually able to get help for your son and find a support group for your selves. I can't imagine how difficult and frustrating it must have been for you. As someone else mentioned having a child with a disability is a challenge but there are all sorts of levels of disabilities. |
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that's like saying people with a family history of diabetes or heart disease or arthritis should not have children. no one knows how their kids will fair. every parent rejoices when they count five fingers and five toes. no one is guaranteed a perfect child. if everyone in the world with a mental illness decided not to have children for fear they'd have a child like jani there would be no intelligent human life on this planet. |
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Thank you for an intelligent post. |
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ditto |
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i wonder if the "other world" friends like "400" are symptoms of schizophrenia exclusively. i wondered about her IQ too... autism as well as schizophrenia perhaps. |
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peace to you and your family. thank goodness for the other ten percent. |
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This post simply shows that you have no significant understanding of either diabetes OR mental illness. |
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You totally missed the point. Not a surprise given your previous posts. |
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Prayers for this family.
I am sure if the parents were celebrities or had loads of money they would be able to get the help they are asking for - for their daughter. It is unforgivable that there is not a place where this family can place their child to get the constant help she needs w/out just locking her up and forgetting about her. Just because something is rare doesn't mean it doesn't exist. |
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My heart breaks for this family. With California's budget in the toilet, things will only get worse. I do wonder, though, why they're allowing their minor child to be videotaped?
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As ill as this young child may be the local school district is responsible for providing her FAPE. (Free Appropriate Public Education) If Jani can't be maintained in her local public school then other options must be considered. There are residential programs and an Individual Education Plan ( IEP) must be developed to meet both her cognitive needs as well as her emotional needs.If the only way this can be done is with one teacher andone teacher assistant then that is what the local public school is required to provide. This isn't the 18th century.
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Who are you looking to sue? God? You really think this country needs more lawsuits? You want to sue the doctors to force them to cure her? If the help and support doesn't exist, stamping our feet and demanding isn'tt going to produce it. |
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