Secret Side Effects

Has anyone experienced addictive / compulsive behavior while on an agonist (mirapex / requip)- gone off the Rx but still had residual effects? I'm desparate for someone to help me.

Bonnie Clay-Riley wrote:

Mirapex took me down. At the first sign of unusal symptoms ramp off this drug. I stopped taking Mirapex 10 months ago. l have not been able to stabilize since the nightmare started over 2 yrs. ago.
Bonnie

Bonnie,
I must talk with you. Read my post (#41) I'm needing some help with the same thing.

ROGER GREINER wrote:

I AM CURIOUS OF THE AMOUNT OF PEOPLE THAT ARE READING THIS SITe MY EMAIL IS rgreiner2@comcast.net if any body that has had problems this drug and wants to corospond with me
please do

Roger,
My post (#41) is very similar. I need to get in touch with people who suffered AFTER stopping the agonists.

drpptsd wrote:

<quoted text>
Roger,
My post (#41) is very similar. I need to get in touch with people who suffered AFTER stopping the agonists.

YES I STOPPED TAKING REQUIP 08/12/07 HAD SEVERE DEPRESION FOR 12 MONTHS I WAS ASKING GOD TO LET ME DIE IN MY SLEEP ALSO HAD PROBLAMS RECALLING DATES IT HAS PUT ME ON TOTAL DISABLIITY WITH SOCIAL SECURITY AT LEAST I GOT THAT I AM STILL SUFFERING FROM HIGH ANXIETY MY MEMORY SEEMS TO BE SLOWLY COMING BACK I AM STILL FIGHT CRIMINAL CHARES IN COURT FOR CASHING MY SONS PAYCHECK AND DRIVING DRUNK CHARGES AND DRIVING ON SUSPENDED IT IS A NIGHT MARE THAT IS FOR REAL!!!!! EMAIL ME AT rgreiner2@comcast,net
OR YOU CAN CHECK ME OUT ON MYSPACE GOOGLE ROGER GREINER R.C.DANIELS BAND AND SEND ME A MESAGE IT WOULD BE NICE FOR US TO START A BLOG WITH YOU COMMENTING AND BACKING ME UP ABOUT REQUIP AND MIRAPEX I ALSO COULD USE A WITNES IN COURT TO HELP ME OUT IF THIS MESS!!! THE CASHING OF MY SONS 2OO DOLLAR PAYCHECK IS A FELONY AND THEY WANT TO PUT ME JAIL IF ANY ONE WOULD COME TO MY RESCUE AND TESTIFY ABOUT YOUR EXPERIANCE WITH THESE DRUGS IT WOULD BE DEEPLY APPRECIATED

THANK YOU ROGER GREINER

Just recently I have discovered that as a result of taking the medication Requip, manufactured by Glaxo/Smith/Kline. I have developed a obsessive/ compulsive gambling disorder. By taking this drug for the past 4 years I have destroyed my 31 year marriage, lost my home, and maxed my credit cards. I have gambled away approx.$150,000.00. I feel in taking this drug, Requip, I have been damaged not only physiological, but, physically. As this year I was hospitalized with blood clots, collapsed lung and had to have a defibulator implanted and was on life support for 4 days.
For the past four years I have suffered with severe nausea and sleep disorders, not knowing why until doing research on this drug. Please help, what next death. Isn't there some legal justice for those of us who suffer the effects of this drug? If you are an Attorney in southern California or specifically San Diego please submit a post through this website contact information.

Why haven't, We, the complaints, of the this drug, Requip, started a Class Action Lawsuit. So far I have tried to contact several Attorneys in my area and have been told they don't handle this type of case. I'll bet if we all joined in someone would take our case. Please contact me if you are interested in pursuing this matter. My email is Firstclasslass@yahoo.com.

I have been taking all of the nastey PD drugs now for 4 years. I shake,rattle androll, but not necessarily in a good manner. I get 4 to 5 hrs sleep a night, no wonder I am constantly tired, have zero,I mean zero interest in sex, tried all the ED drugs, nothing, may as well flushed them down the turlet(Archie Bunker term) Feet hurt, muscle cramps, and gain weight? Did I mention I have gained 78 pounds in 2 years? Memory (short term) is fading faster than a Canadian sunset.
and I am not even 60 yet. I fall asleep anywhere, anytime for10-15 SECONDS..oh yes, I gave up driving..your safe.

I'm seeing my lawyer this afternoon about my outrageous credit card debt.
My husband doesn't know about it. I'm sure he'll divorce me when its out in the open. I don't know the difference in debt management and debt settlement.
May not qualify for either. All since I started mirapex, the only thing that controls my RLS. Requip puts me to sleep immediately. Who can work? So, he put me on mirapex and senemet. I take senemet about 4 p.m. and mirapex at bedtime. I have 4 storage bldgs. full of junk I've purchased. I've taken back all I can and hope to sell the rest at some price but I'll never recoup my self esteem or the respect of my husband and grown children when they find out and I must tell them. This horrid jerking leg is impossible to deal with. I feel like my whole body will implode if I don't take it.
What to do? Please help?

I have lost my life savings and my self respect aaaaai lost everything in 2003 and continued gambling, doing without things to have enough money to gamble,only two month ago did I hear that sinemet had a side effect and it was gambling compulsivly,that was me ,I never had a compulsive bone in my body...My dr. said he did not know,,he had no warning and sent me to a gambling councellor, who did not know,that was in 2003,I went bankrupt, still gambled,now my DR. says it was the medication...I,m mad where was the warning,he took me off sinemet and put on pramipexole,which is worsr...I took my last npill last night,I hope the report is right ,andI stop gambling,I,m tired of not having money and paying some of the casino wages

Parkinson's drugs like Mirapex and Requip have been linked to compulsive disorders like gambling addictions. For more information visit:http://www.yourlawyer.co m/topics/overview/requip

There are far too many stories like this. I have created a new website called mirapexvictims.com to share my story and link together as much information as possible. As far as the credit cards, I have the simple answer..just don't pay. There is nothing they can do. Most of us will have already gambled away our assets by the time the credit cards get run up. So sue me? Go right ahead. But they don't cause they know its expensive and a waste of money.

ann wrote:

Peggy in Redmond, I had a terrible, life-changing experience with Mirapex when taking it for fibromyalgia.
I can't believe Mirapex is still on the market.

You can't just pull primapexole off the market and deny the myriad people who are helped by it just because a handful of people go off gambling and having affairs and blame it on the drug.

My wife was diagonosed with PD at the beginning of the summer. At which time she began taking medications prescribed for the condition. She waited almost a month to tell me. She refuses to let our 11 year-old son know, at least not yet.

I was rather stunned that about one month ago, she became very interested in sex, something we had not had alot of over the past three years due to her complicated menopause and eventual hysterectomy. It was actually really nice, and seemed like we turned back the clock on our marriage.

Yesterday, we were supposed to have a date. Instead, she put of tight jeans, a low cut top, and went to the mall. When I asked her why she blew off our date, she told me how much she enjoys having other men stare at her when she dresses provocatively. She says it makes her feel powerful. In 17 years of marriage, she has never acted like this.

I am 66, PD for 2 yrs, started on Requip, but it did nothing for me. Started on Mirapex with Carbidopa-Levo, built up to 3x a day on the 0.75 Mirapex. Had some side effects at start with sleep, loss of appetite, weight loss, muscle aches, depression. All went away about 6 weeks. Have experienced no compulsive behaviours, except maybe a desire to buy more Exxon Mobil stock. I walk better, speak better, trip less, swallow better. I still drive my Miata 5 spd convertable like a teenager. I take propanolol for the shakes on right side. Still work half time, active with my hobbies, paid off all debts. Sorry to hear of Mirapex problems, but it seems to work for me.

Mark wrote:

My wife was diagonosed with PD at the beginning of the summer. At which time she began taking medications prescribed for the condition. She waited almost a month to tell me. She refuses to let our 11 year-old son know, at least not yet.
I was rather stunned that about one month ago, she became very interested in sex, something we had not had alot of over the past three years due to her complicated menopause and eventual hysterectomy. It was actually really nice, and seemed like we turned back the clock on our marriage.
Yesterday, we were supposed to have a date. Instead, she put of tight jeans, a low cut top, and went to the mall. When I asked her why she blew off our date, she told me how much she enjoys having other men stare at her when she dresses provocatively. She says it makes her feel powerful. In 17 years of marriage, she has never acted like this.

Well, guess what ? She filed for divorce and served me papers on last Friday. We have a son turning 12 on Christmas Eve ! She doesn't seem to care at al that this will ruin Christmas and birthdays for pertty much the rest of his childhood and young adult life. Her meds are keeping her looking like she is OK, but they are doing strange things to her compulsion control. I am now the bad guy, and I am being forced out of the home I lived in for the past 17 years. I will have shard time with our son, but she is petitioning to have primary custody.
I WANT TO SCREAM!!!!!!!!!!
The doctor won't talk to me. Keeps quoting the HIPPA laws.
My son will be shattered when he finds out. I have talked my wife into waiting till after the holidays to tell him. We are putting on a good face, and so far, he doesn't suspect.
If any of you on this forum pray, please pray for my family, my wife, and especially for my son who will be the most vicitmized by this. We are hurting so bad in this house....

Along with weight gain, urges to shop and other compulsive symptoms, I have experienced amazing stiffness ang soreness of my bones&muscles. Do any of think this is the Mirapex?

ann wrote:

If you've been taking it for 3 years with no side effects, you're probably fine. I didn't start having the compulsive side effects until after 7 months.
For me, the benefits were outweighed by the side effects. I didn't sleep more than 3-4 hrs. a night for over a year, became hypersexual and had an affair after 14 yrs. of marriage, and basically became another person. All of my relationships suffered. I'm separated and getting divorced. I have been depressed because of what happened while on it, and took a bunch of pills one night in an attempt to be free of the emotional pain. I'm still going through therapy because of it.
The problem is, that you don't really realize you're different, but others can see it. But it's not so obvious that they really know what it is that's different.
I feel that it's a dangerous medication for some people, and doctors don't seem to get it. I didn't even tell my doctor about the hypersexuality because I was too embarrassed. How many other people haven't said anything for the same reason?
Anyway, I would definately watch for compulsive behaviors, because it can really mess up your life.
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Ann, I experienced similar side effects after taking Mirapex and like you, subsequently ruined my life. My marriage, my finances, my reputation all suffered from it. I am now divorced, raising 3 kids, on disability, bankrupt, etc. I too didn't tell my doctor specifically about my hypersexuality because I was ashamed and embarrassed. You are especially right about asking doctors to make your family aware of what could happen because when you're in the midst of it all, no one can convince you you're truly lost. Thank you for sharing your story and helping make sure fewer people have to go through what we have.

I am so relieved to know I am not the only one who has been dealing with this. I thought I was going crazy! I started takng Mirapex a few months ago for RLS, and while it has helped, the side-effects have been terrible. I recently got involved in an extra-marital relationship. It didn't get fully physical, but it got way too close. I have felt as if I were two different people! I love my husband desperately, but I have been unable to control the impulse to be with this other man! It's crazy. I tell myself that I'm being ridiculous and behaving recklessly, and the next moment I'm at the other guy's house! I have been so hypersexual it's almost embarrasing! My husband has benefitted from that, but now it's spilling over into other areas. I've realy been scared because I feel like I'm on a runaway train bound for utter destruction. Reading all this though, I can se what I need to do. I'm getting off the Mirapex. If I continue to have problems with RLS, I'll go back to my doctor and tell him what I've been dealing with. I'm so relieved to know that I'm not losing my mind! There should be more of a warning with this type of drug. My doctor didn't say anything about the side-effects!

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1. Intraarterial autologous implantation of adult stem cells for patients with Parkinson disease. http://www.ncbi.nlm.nih.gov/pubmed/20346882 (This is an article that made us won a price in Washington DC, USA by the society of interventional radiology).
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We must admit that taking synthetic medication is like accepting the fact there is a possibility that we will be experiencing some side effects which is a reaction from our system. http://www.depuypinnaclelawsuit.com/hip-repla...