Full story: The Charlotte Observer![]()
Comments
|
Montel, RE: MULTIPLE SCLEROSIS....I work with a 13 year old company who has scientific proof that you WILL get your life back to normal ++
No more are people on meds. NO MORE "TRIPPING"..NO MORE SYMPTOMS ! Four NOBEL PRIZES in medicine since 1999.. Featured in 'BREAKTHROUGH IN HEALTH' magazine,this month !(Sept.2006)..this IS REAL!WE HAVE ALL MEDICAL PAPERS TO BACK IT !(not a drug) Bill Gibson |
||||
|
I have "invisible MS" and really resent the statement that heat is the enemy - born in SoCal, I lived (and was diagnosed) in Maine ... there sure isn't heat there and I was MISERABLE (spasticity). I moved to Louisiana in January 2006, and I've never been more comfortable. My arm- and leg muscles have FINALLY released their hold. I know everyone's symptoms are different, but all I can say is: THANK YOU, SUN HEAT & HUMIDITY!!
|
||||
|
I have MS and i was wondering what it is that you are talking about that gave your life back?
|
||||
|
Help...I did gymnastics until I was 14. Was training for the olympics when I first started complaining to my parents that my legs were weak and I couldn't hit a double anymore. I was working on a triple at the the time. My legs gave out one day while I was on the balance beam and I shattered my knee caps. I think this was the beginning and also the straw that broke the camels back so to speak. Since then I have had a major car accident with a C-3 injury (spinal block) to make the flashes and colors in my eyes go away. Now everything hurts. I spend everyday trying not to take their narcotics (for fear of addiction and labeling) Sometimes my leggs work and sometimes they don't. I have wheelchairs, a hospital bed, a potty booster, gel cushion, I have made all of the adaptations except for the lift for the truck. Yes, all at my own expense, and without a prescription because the Dr's can't believe I'm in such good shape and hurt "that bad". My question is...If I have an MRI of my brain and it shows TIA's,("12 little dead spots in my brain", but no plaque shows in my spinal fluid (only elevated protein) and my symptoms come and go "just like that" is this indicative of M.S.? I just got dumped by my primary; he accused me of being drunk. I swear to God I wasn't! Sometimes my feet, brain, arms, whatever,...fill in the blank ...just don't work. I can try to talk, see the words, hear the words, but when they come out of my mouth they sound foreign..like someone else said them. If it doesn't show in the spinal fluid how am I ever going to get these Dr's to take me seriously?
|
||||
|
Jennetee,
They are the wrong doctors! We all are ultimately responsible for what medical care we get, but a doctor should be on your team. You work together to discover what works. A good doctor listens and takes you seriously. Hopefully with good insurance, good costs the same as bad in co-pays. I know In a way I am "lucky" having MS near Baltimore (having moved from NY area with same) close to famous hospitals and Universities with MS centers and special neurologists. Have a good primary care doctor who listened to me, sent me to a specialists where I got diagnosed and calls me at home to offer support. She is a woman and lets me cry. In the past encountered doctors who didn't see my problem and said "I don't know what it is, but it's not MS" But it was!! |
||||
|
There are evoked potentials, reliance on patient's telling of things (anedoctal), etc. MS isn't always easy to diagnose, there is no test, conclusions sometimes must be reached after ruling some things out . A good doctor looks at whole picture, not things in isolation.
|
||||
I guess I probably shouldn't be commenting because I am not officially diagnosed, however, I lived in Ohio for 2 years and every time I went outside in the winter I couldn't function at all because of the spasms in my whole body. Everybody else shivers, I shiver then get crippled. I live in Florida now (despite what the ISP says) and in the summer I can be outside in the morning or evening and it doesn't bother me so bad. I am lucky enough to have a pool and most of the year I can use it to cool off in. In the dead heat of summer when the pool is warmer and no longer refreshing and doesn't help to bring my body heat down, the heat is unbearable. From about 11a.m. till 4 or 5 p.m. I go from A.C. in the house t A.C. in the car and have to avoid being outside. For years it was only the cold that bothered me, thats why I moved back to FL but now the heat is just as bad. |
||||
|
The heat really bothers me here in Maryland (pay no attention to ISP), am lucky enough to have pool, go from there into cental-air house. Don't drive anymore (vision problems, distance judgement,loss of good use of left hand) Heat kills me, handle cold better but do wear coat and gloves and don't go into it much.
|
||||
What do you mean when you say flashes and colors in your eyes. I have from time to time fractured light episodes where a prizm colored zig zag light comes across the middle of my vision and last from 30 minutes to 1 hr. starts slow and progresses then slowly goes away. then I can fully see again. |
||||
|
||||
Please note by clicking on "Post Comment" you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms. Be polite. Inappropriate posts may be removed by the moderator. Send us your feedback.
| Topic | Updated | Last By | Comments |
|---|---|---|---|
| Dr. Paolo Zamboni at his research lab at the Un... | 2 hr | Peter | 69 |
| Dr. Paolo Zamboni at his research lab at the Un... | 8 hr | P Stock | 161 |
| 'It's like a miracle' | Tue | Francois Nadeau | 1 |
| Reedsville woman records CD to battle MS | Dec 8 | Joe | 1 |
| Dr. Paolo Zamboni at his research lab at the Un... | Dec 7 | kathy | 19 |
| W5 investigates intriguing new theory about MS | Dec 3 | linda bulyea sk | 8 |
| High unexpressed anger in MS patients linked to... | Dec 2 | c richards | 2 |