Lupus Support Group

I am the Facilitator for a Lupus Support Group here in the San Joaquin Valley in California. Please contact me if you have any interest or questions regarding our meetings. I have Lupus (SLE), Rheumatoid Arthritis, Vasculitis, Raynaud's and Ulcerative Colitis. Remicade, Methotrexate, Plaquinel, Prednisone, Toporal XL, Avapro, Asocal and some of the drugs I am taking. I would be happy to answer any of your questions.
Thank you and Happy Holidays

Hi...I live in Yuma AZ. and see a rhemy there in CA...I have developed deep sores on my legs and upper torso...that are very hard to heal...I have an appt. coming up soon w/ my rhemy...do lupus liesions develope into deep sore that scar? I need 2 knee replacements; but can not get them done until I get these sores healed up...it seems to be an ongoing thing...and it's really hard to walk. Any suggestions?

Hello from a newbie!
Hi out there. I wanted to introduce myself to everyone. I’ve been searching the web for info about lupus and found this board. I’ve never thought about joining a board before, but after reading through some posts, I’m happy I did. I just want to say thanks to everyone for the support you offer here.

Great lupus video
I found this site called realhealth.tv which has a great video. Even though I am a new member, I think everyone here would really like watching this film b/c it was really nice hearing and watching someone talk about their difficulties and how they cope. I wanted to share this with everyone here, hoping it would help you guys too. Here's the link http://www.realhealth.tv/site.html...

Laura Mahoney wrote:

I am the Facilitator for a Lupus Support Group here in the San Joaquin Valley in California. Please contact me if you have any interest or questions regarding our meetings. I have Lupus (SLE), Rheumatoid Arthritis, Vasculitis, Raynaud's and Ulcerative Colitis. Remicade, Methotrexate, Plaquinel, Prednisone, Toporal XL, Avapro, Asocal and some of the drugs I am taking. I would be happy to answer any of your questions.
Thank you and Happy Holidays

Hi Laura-
I am a resident of the San Joaquin Valley, Fresno, and I am also an eight year survivor with Lupus. I am curious if you still have meetings, and where are they held? I would love to join you all.

Hi there. I know a natural product with very high antioxidants that can be used as a subtitution for medications. In fact, this lady from CNN news has been off her medications since she found out about this vitamin and is free from all her pain. Email me at dawnkim77@yahoo.com if you would like to know more about it and I will give you the link to that video from CNN news as well.

Hello San Joaquin Valley residents, I'm a Stanislaus Country lupus resident and owner/founder of www.LupusMCTD.org as well as www.MixedConnectiveTissueDisorders.com
I wished I had seen this post before this past weekend, as we just held our fist annual Patients in the Park picnic up in Lodi, CA (I'm in Modesto)
Perhaps we can work together towards our second annual to beheld down south so you can attend.
I'd love to hear from you,
Kathy Walters
LupusWebsite@aol.com

I have had lupus vasculitis for 11 years.

I would like to know the side effects of immuran.

I have lupus and was diagnosed last year I met alot of great people who share this dreadful disease. Si I started a web site called Lupus Fighters at www.lupusfighters.com

I'm here--finally--I had a very rough couple of weeks--- my brother n law died 9 days after they unhooked him from the life support where as my hubby stayed with him and slept in a recliner by the hospital bed. Then my sister n law could not even get her husband buried correctly--she told everyone including the funeral director that she had everything taken care of--- the day before the funeral--she still did not have a plot--- I called the cementary and they said she still owed from a bounced check for a previous funeral--so they could not help her--sooo I went to the funeral home ( that I unforutatly know very well) and talked to the director --he helped me get him into another cementary but it would be a day longer--BUT the funeral had to take place on time because of other people needing it--- so we had the veiwing on tues -- funeral on wed and he finally was buried on thursday . And all along I kept saying he has a wife--- it's her job to do this--not mine!! I had to help Johnny and his mom bury his other brother because he had no one!So after all of this I was sick all last weekend--bone tired and just not feeling well. Then Johnny got sick on Monday--I think his was being overly tired but we seem to be hanging in there--by the way I hope this is the right posting place--I can not find out little boxing glove icon!! ttyl Diane

We have a physician moderated social support group for those living with Lupus. The site is free and you may ask our physician specialist relevant questions:
http://lupus.physiciansforpatients.com/
-david

hi i was recently diagnosed with sle and im looking for a support group in the san joaquin valley or tulare county area please let me know if anyone knows of one or anything else that may help... thanks

My wife was *finally* diagnosed fibromyalgia and Lupus about a year ago. We knew something was wrong for the past 8-9 years.

I am looking for a support group that we/she can attend in the Modesto/Ceres/Turlock or surrounding area.

Any assistance would be wonderful.

Thank you all,

Sam

Sam wrote:

My wife was *finally* diagnosed fibromyalgia and Lupus about a year ago. We knew something was wrong for the past 8-9 years.
I am looking for a support group that we/she can attend in the Modesto/Ceres/Turlock or surrounding area.
Any assistance would be wonderful.
Thank you all,
Sam

I was a facilitator in Los Angeles. Have you done a google search for support in your area? I would also look online where there was a lot of support at one time. I would not disregard the Arthritis Fdn which does more work with Fibro and Rheumatoid Arthritis than Lupus. Those with Lupus seem to be orphaned at times. I hope this helps. Dont give up.