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Cystic Fibrosis

My husband has CF, 24 yrs old. PFTs are 46 before they were 43

Posted in the Cystic Fibrosis Forum

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Showing posts 1 - 13 of13
Marissa Gamble

Saint George, UT

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#1
Jun 10, 2006
 
Hey there just wanted to tell everyone that has CF, a family member or friend that has it how they are doing. My husband juxst turned 24 on april 23 and is doing great. We are taking this nutrition drink called Monavie that has been known and said to help immune problems. We hope it is helping him. He isn't coughing as much. we hope hus next dr. visit his pfts are a littel higher. like in the 50s. How is everyone coping with it and how old are they. What's the oldest person that lived with Cf? Does anyone know. Thanks.:) With love and prayers, Marissa
romeoboat at yahoocom

Lees Summit, MO

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#2
Jul 10, 2006
 
HI GLAD TO MEET YOU/MY NAME ANN & SON MALACHI/CF/30 SEPT/MO.>> CAN U EMAIL OR MAIL PAMPHELT ON THE NUTRITION DRINK YOUR HUSBAND USES>>>210 S PLEASANT INDEP,MO 64050 %HAMBLEN/THANKS!! HOPE YOUR HUSBAND IS DOIN WELL!!! GOD BLESS YOUR EVERY BREATH!!!
romeoboat at yahoocom

Lees Summit, MO

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#3
Jul 10, 2006
 
romeoboat@yahoo.com/malachi cf & mom/ cherubangelov>>>> thanks again!!!
Debbie

AOL

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#4
Oct 25, 2006
 
Marissa Gamble wrote:
Hey there just wanted to tell everyone that has CF, a family member or friend that has it how they are doing. My husband juxst turned 24 on april 23 and is doing great. We are taking this nutrition drink called Monavie that has been known and said to help immune problems. We hope it is helping him. He isn't coughing as much. we hope hus next dr. visit his pfts are a littel higher. like in the 50s. How is everyone coping with it and how old are they. What's the oldest person that lived with Cf? Does anyone know. Thanks.:) With love and prayers, Marissa
Hope this is where I write. My son is 24 and has CF, he recently met and is going to get married. Do you have advise on getting married to someone with CF. He is on medicare, is your husband also on medicare? What happens to all the medical bills and are you the spouse responsible or harrased for any of the bills? What about income? please contact me with advise that could be helpful. thank you Marissa...cruzinjax@aol.com
arlene

Ronkonkoma, NY

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#5
Nov 3, 2006
 
hi,

Could you let me know where you get this drink? Is it in health food stores? Is it safe for someone w/cfrd?

It sounds great for my son. He is the same age as your husband.(24) soon to be 25.

can you please answer at my email reeses4@hotmail.com? Thanks
Amber

Minster, OH

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#7
Oct 23, 2007
 
Marissa, Did Monavie help your husband? I really want to know. Thanks and the best to you.
ricky warren

Kansas City, MO

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#8
Feb 27, 2008
 
i have cf emphesema, diabetis, sleep apnea,morbid obesity,possibly glaucoma wow im lucky and blessed to be breathin at 48 and suffered this for 10 years
Nobody Important

Greensboro, NC

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#9
Mar 10, 2008
 
OMG Ricky Warren You have CF and Morbid Obesity... thats kinda strange, impossible if you as me... but anyways for those of you looking to gain weight I actually Drink a quart of half and half EVERY day and it helps dramatically... 1280 calories and at Sams club for less than $2 a quart its one of the cheapest nutritional substitutes i have ever found. it also doesnt have a WHOLE lot of sugars so if you have CF related diabetes like me its better than Boost or something that is so sweet and flavored. I gained about 10 pounds in 2 weeks, eating heavily of course too... but try it ... its worth a shot
Jack Rabbit

Stantonsburg, NC

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#10
Mar 11, 2008
 
O Dear God woman have some decency!
Crista Didyk

Kelowna, Canada

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#11
Mar 11, 2009
 
Marissa Gamble wrote:
Hey there just wanted to tell everyone that has CF, a family member or friend that has it how they are doing. My husband juxst turned 24 on april 23 and is doing great. We are taking this nutrition drink called Monavie that has been known and said to help immune problems. We hope it is helping him. He isn't coughing as much. we hope hus next dr. visit his pfts are a littel higher. like in the 50s. How is everyone coping with it and how old are they. What's the oldest person that lived with Cf? Does anyone know. Thanks.:) With love and prayers, Marissa
Marissa, does Monavie help your husband with CF? I am also taking it, and it does wonders for my energy, and i haven't been sick in a year! not a cold or anything! My friend has CF and he's had a lung transplant, I am trying to find some studies or testimonials connecting CF and Monavie. What does your husbands doctor say about it? THanks!
Larry

Nanuet, NY

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#12
Jun 9, 2009
 
I am a Mona Vie distributor and people all over the internet make claims about the amazing benefits of this acai blend... it seems so unbelievable, then I started taking it and my whole family and friends, and we all experience great things, all different, all amazing. I am researching Mona Vie for CF because one of my wife's best friends has CF and I wanted to get feedback from anyone on MonaVie that has CF... what have your experiences been? If you want to try the drink email me: larry@grossenbacher.me
Charlotte

Kingston Upon Hull, UK

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#13
Jul 16, 2009
 
my sister has got cf, shes 14 and doesnt cope with it very well, shes happy that the life expectency is going up. by the way, my sister drinks fortyjuice she gets them from her nutrisionist and she put them on prescriptions, and theres also scandy shakes as another option for putting on weight on. we live in the united kingdom so we get them free.
Jason Lieb

Napoleon, OH

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#14
Friday Oct 30
 
Hello, i also am a monavie distributor and if you would like to try some and get more information, here is a website you can go to: www.the-team.biz/mv991148 . You can order some straight from the site. If you need more, my contact information is on the site as well. God bless.
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