Judge it!
Hi I am 24 I have been diagnosed with colitis about a year ago I had the symptoms for about 2-3 years before hand. I have been to many different doctors who have tried me on rectal foams suppositories and Steroids I have had a colonoscopy and currently taking 1000mg of Pentesa a day but still am severely suffering Abdominal pain hemorrhoids ,rectal bleeding and sudden urgent!! bowel movements sometimes upto 10 times a day pretty much completely watery bloody stools.
I'm not looking for a Miracle but help with Diet and things that may have worked for others.
It has drastically changed my life work wise,Sports and my relationship.
My doctor has basically said pentesa and Sylium Husk daily is all that can be done for me.
Please can anyone help with this Diet especially or anything that could help hints or tips to decrease the effects of my colitis.
You can email me jharn@woosh.co.nz
Please and thank you
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I have had ulcerative colitis for about a year now and have had two major flare-ups with symptoms similar to yours. My doctor has prescribed me Colazal (or Asacol) which I take everyday. To control the flare-ups, they have given me the steroid Prednisone. Although it is a great drug that gets rid of all symptoms, it should not be taken for long periods. When it come to diet, I was told that low residue, low fiber diet should be followed. No fresh, raw vegetables or tough meats. Nothing with seeds. No pineapple or strawberries. Nothing with skins (like apples or grapes) and no nuts. If you type in low residue diet on a search engine, then you can find more details. I hope this helps. You are not alone. Research all you can, and that should help you.
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I have a question for you guys. What is it called when you feel like you need to have a bowel movement but you can't discharge anything. I'm having this problem sometimes after I've completed a bowl movement 15 to 20 minutes earlier. I'm just wondering if anyone else has experienced this problem.
I'm currently taking Colazal but I'm considering switching to Pentasa. Also, I'm wondering how often someone with Colitis should have a colonoscopy? My email address webmaster@adrianlove.com Thanks,
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Hi Jharn,
I am 26 and have been diagnosed about 2 years ago and like yourself had the symptoms for about 2/3 years before. I have been taking probiotics called Mutiflor, aloe vera juice and fish oils, which all help a lot although they don’t remove the symptoms - I'm on 3000mg of Pentanasa at the moment but I have different symptoms then you in the way that I have heavy bleeding but irregular stool. I try avoiding nuts and too citric fruits drink plenty of chamomile as it does reduce inflammation in large quantities. I hope that it helps you and all we can do is hope that there will be something out there pretty soon. If you any questions you can email me on antoniakent1@hotmail.com Best of luck, Antonia
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I have tried an antifungal diet, and it has worked wonderfully. Eliminate all grains, sugars and yeast products(read all labels) for up to 2 weeks, and I'll bet you get positive results.(no cheating!) As well, take olive leaf extract 3X/day, which is an antifungal. More and more research is pointing to UC being a fungal disease. I wonder if you crave/ love bread and pasta? If you starve the fungus, you will kill the fungus, and symptoms should get better. After 2 weeks on this diet, I was pretty well symptom free. As long as I avoid yeast now, I am OK. I also limit the sugar and grains I eat, so basically not much processed food. Anything else is OK for me...lots of meat, fish poultry, veggies (not corn) and berries and green apples. Most other fruits have high sugar so use them in moderation too. Good luck. If you are really at your wits end, google Doug Kaufmann, as he is one of the researchers of this and actually has a book, "The Fungus Link" that I followed to get well again. Good luck! Let me know if you need more info. I know it sounds too simple, but it really is a diet related disease. Take care,
Kim kim223344@hotmail.com No, I am not a snake oil salesman!!:) |
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I was diagnose last year 2005, I had my bleedings and mucous, since I was diagnose I had 2 flare ups.
Well? I decide that I need to educate myself on this matter because my doctor believes that foods have nothing to do with it, which I think is completly false!!! I start it with gluteen free diet! very expensive! and it did releive the symptoms I have to say! bt them because of being way to expensive those trips to health food store I decide to search for more options, start eating everything fresh!! fish, meat,chix, turkety etc,, vegetables fresh, NO CANS!NO FROZEN! small portions, NO WHEAT, thlem for me cereal I buy is gluteen free, milk lactose free(FAT FREE) I have no problem with that at all! yogurt fat free with cultives, fresh fruits always in hand, I love sweets like cakes, pies cookies etc... big problem for me as you see because of the wheat! but? i search on SCD DIET they h ave a lot of recipes for breads and cookies etc.. search on it! change your diet for better foods and healthy foods and remember small portions and snacks in between and .. a lot of water, I personally don't drink anything else than water all day! no coffee, I gave it up! I don't bleed right now, no mucous It is working very good! And I only take 1 pill a day of diapentum but I do take Complex B vitamin because I was always tired and no ambition at all this change me, I exercise now every day for an hour that to show you how much energy I have now! I did ask my physician about vitamins to boost my inmune system up!he recomend Complex b to start to see how do I do for the month and it worked! I didn have to change it. I am looking to stop this medicien soon, I am afraid I have to say but I have to see how well do I do with my change of foods. Hope this is somehow helpfull to you! |
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I would call it a false alarm. Or that you are no longer full of @#$%#%. Just kidding. Colazol did not work for me and Pentasa gave me pancreatitis and 5 days in the hospital. It may work fine for you. Drugs have different effects on different people. For frequency of the scope, I would follow my docs recommendation. |
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I was diagnosed in early 2004 with UC and cured it with the anti-fungal diet.
Please see my website for details: http://www.geocities.com/ucfungus/index.html |
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AOL |
The only "cure" for colitis is a colonectomy. I am scheduled for one on Dec. 27th. I have had the same symptoms you mentioned, but ran out of medicinal options. Asacol, Colazal, Remicad were not effective, Pentasa gave me prancreatitis and another drug did also. Predinsone causes as many problems as it solves. |
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I have had colitis for a couple of years and I was hospitalized because I lost 40 pounds and I was already small. I was pretty much given two choices have my colon removed or take a drug originally developed for crohns patients. I had tried it all; suppositories, steroids, asacol and changing my diet. Nothing had worked and I decided to go with the new drug called remicade. I am now over one year flare free, although I do have to get infusions every two months. I just think with the advancements in medicine and my luck I would have removed my colon and one year later a cure would be developed. anyways, remicade saved me so far. But just to give you both sides of the story there are many potential side effects to this drug.
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I know you say that you think food does have a lot to do with it but not so much in colitis as in crohns. In crohns disease the sufferer must go on what is called a "life long diet" of low fiber. In colitis they have not found anything that is directly related to the flare ups. The two main culprits that are thought to cause flare ups are stress and genetics and they have not even been fully confirmed by science. Don't take this as an attack to your article you may be fully correct but I have tried the impossible diet and about any other drug you can think of and the only thing that has worked for me is remicade infusions. |
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but it only makes sense that what you put into your body affects the way it comes out. i don't follow a diet but i observe how my body digests certain foods. i'm taking the AloeElite and its helping me so much. look at their diet on their site. www.aloeelite.com it makes sense to me and so far its working. i'll keep you informed.
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Mc Minnville, TN |
Helly, I read blogs all the time, but rarely reply to them, but felt I must this time. I also have UC, was diagnosed in Jan 06, but had an outbreak 3 years prior that went undiagnosed. The miracle drug for me was ASACOL. I took 6 pills daily for 6 weeks. This stopped the urges(which were occuring about 16 times per day). I really did not realize how much pain and discomfort I had been dealing with on a daily basis until it was gone. I must say this drug is expensive but worth every penny. I have taken 2 rounds(6 weeks per round) and so far have had no problems. As for the diet, I find the discomfort(bloating when eating) is less when I eat smaller portions more frequently throughout the day. I also don't drink any kind of soft drinks or carbonated beverages.
Hope this helps
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I am sufeering from uc and tried asacol/prednislone but later left them and started betnisol forte and now i am totally dependent on this drud if i don't take i could not get off the bed i am eating what my body digest & that is low residue diet
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Hello, I am 31 and have had Ulcerative Colitis for 15 years. I have recently began a flare up and this time I am having a hard time with it emotionally. The Dr just changed my medication from Pentasa to Colazal. I am hoping that this gives me some results. I will be having yet another Colonoscopy next week and I always look forward to them because it eases my concerns about Cancer. I now have two small children and am thinking that I may want to have it removed has anyone reading this had that procedure and if so what can you tell me about it? I am not sure that living with UC is better then having all the pain go away, and of course getting rid of the possible Cancer word. Any words of adivse would help. I know I should be giving the advise since I have had this for sooooooo long...
Thanks |
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I am so down over this disease
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Hello all,
This may sound odd, but firstly I would like to say a big thanks to all of you who have made your ulcerative colitis issues and triumphs so public. I am a nursing student who is working on a project with a few other classmates, and we have chosen to look at ulcerative colitis and how it is effecting the lives of young adults. None of us know what each of you are going through day by day, and due to the fact that each individual's symptoms manifest differently, it is hard to provide hope to our patients. However, reading what has worked for some of you as well as your perseverence in dealing with what I can only imagine to be an extremely difficult diagnoses is more than inspirational. If anyone would be interested in emailing me with anything else that might help us gain insight into this illness it would be greatly appreciated. Please be rest-assured that your personal information (ie-first or last name, or other traceable info) will not, and cannot be used in our presentation. Our main goal is to increase awareness and provide the new generations of nurses with more tools that might help future and current patients with ulcerative colitis. Thanks again, Sarah. sarah_lesko@hotmail.com
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I was completely off medication at this point and was reluctant to go back on it, my partner suggested that I stop eating the one thing I ate the most of, BREAD, immediately with in 2 days it was like a miracle, I started to recover and symptoms stopped, I've now been wheat and gluten free for almost 8 months and for the first time in over ten years I don't have diarreah, I don't have pain, I'm actually normal to a point where I questiones if I ever had crohn's or just a gluten allergy, safe to say my other symtoms proved the crohn's, but I was shocked at how much diet can effect you, my whole philosophy of food has changed and now I'm well.... Sorry to waffle on, I know I have, I just wanted you's to hear that all though it's incredibly awful sometimes, it will pass and when you can't figure out a way to stop or relieve symptoms, it really is worth trying new things... if I can help anyone or anyone wants to continue the conversation of me ranting please feel free to contact me, Loomisboy@yahoo.com
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Hi guys,
Just came up on this website by accident, I'm in the UK, Just wanted to let you guys know abit about my Story, might find it encouraging, think there's very little I haven't been through at the ripe old age of 25, I started senior school at 11years old weighing in about 6.5 St, I was tall for my age and podgy, I left five years later for college weighing only 7.5 St despite numerous trips throughout the 5 years of school back and forth to my doctor, he never diagnosed me as anything more than a time waster and to be honest I'd just accepted that feeling ill and in pain was normal as I was obviously just one of those sickly children. I found a lump at the top of my leg when I was 16, i'm sure everyone panics when you find lumps, The doc told me it was a sweat infection and gave me antibiotics, which caused a very painful building to a head and bursting of what I later found out was a fistula, the wound never healed and the doc ignored my complaints until he was away one day and I saw his locum, immediately she referred me to a consultant who immediately diagnosed me wih crohns, eventually after taking a year out of college I started to get back on my feet and managed to have the fistula removed after much painful surgery, then a year later I became ill with a hole in the bowel, I was rushed in to intensive care as the part of the bowel with the hole had become infected, slipped down in to the groin area and built infection all around the pelvis, I lost all use of my right leg (The nerve is still damaged today but I can walk etc) and I had a very swollen area on the right of my groin which was incredibly painful, after surgery to repair the bowel and much time in hospital I started to get on top of things until two years later when the hole reoccurred (They have a 50% chance of reoccurring within five years) I was living in Manchester at this point, I was very ill, my GP wouldn't listen to me and I was finding it hard to get an appointment with consultant as my GP wouldn't push it, I went home to cumbria to see my parents for easter and had them at one point take me to the A&E department at the local hospital, where I waited 4 hours to see a consultant against the duty nurses wishes as she thought this was a matter for my GP, where I specifically told each doc and nurse I spoke to, it feels like it felt when I had the hole in the bowel - To which I was told, you're fine, the crohn's is inflamed but that's normal for crohn's it's probably just arthritis, people with crohn's get that early (I was 20, plus if the crohn's is inflamed it should be treated with steroids not ignored but no treatment was offered) I was sent home and forced to go back to work a few weeks later, two months later I had deteriated to a ridiculous state and decided I was gonna take action, I made an appt with my GP, sat in his office and told him I wasn't leaving till he gave me a letter to go to A&E and see a consultant as I needed treatment, he laughed at me, eventually he caved and got me and emergency appt that afternoon, I was immediately admitted with a reoccrance of a hole in the bowel - I was furious that I had diagnosed myself two months earlier only to be ignored! I was kept in for a month to recover before they operated, I was gonna have an ieliostomy, which is a bag on your adomen, the same as a colostomy but for the small bowel, I went in for the operation and when I awoke all they'd done is remove the piece of bowel that was mostly affected, I imediately started to recover and went from strength to strength, I still had diarreoh, but had come to terms thinking I would have tat for life, but I was putting weight on and I was hungry! Then last year 5 years on symptoms started flaring up, I'd never really believed that diet effected the way I was so I'd never done anything about my diet, |
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There is hope everyday I wake up that I will beat UC. I have had it since 2002. 2 wonderful stays in the hospital and a lot of drug later I have been bouncing around trying to find a doctor that would listen to me not just lets try a new drug. I have gone through major depression with this and I let it affect everything I did. The last time in the hospital as my little girls and wife left the room for the night I promised I would figure this out. I found out a lot about the human body how we work and why things do what they do. I started to see a chiropractor three times a week and worked close with him to learn what sublixatons were and That I had one. I removed soda, fast food I learned how to cook (wife loves that) started to run again and thought if I can run I am not dead. Slowly I started to improved and removed myself from the drugs pred/ asacol and something else that is used to fight cancer. I started making my own yogurt my own little garden. I use a supplement called MSM, a sulfur for my running. In 2006 I competed in my first Duathlon and many 5k's. I have had a few minor flareups but I get through them, usually when I cheat on the diet for awhile. I still use a small amount of Pred. when they happen which I don't like but I can travel, play with my kids and I understand diet and stress play a very important role in this. If your doctor will not give you the quality of life you had before he/ she starts with you find someone that will listen find a corrective chiropractor and work with them give it time. Remember drugs only mask the real problem not cure it. Hospitals are great when you are really sick and need it but they also need patience so if you are cured who wins?
Sthomaschefsky@hotmail.com |
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Yesterday you had a good control over the workings of your mind, but sadly that isn't the case today. Instead, your thoughts are wandering in every direction except the one you need to concentrate on. The result will be a sense of being disconnected from what's going on around you and possibly even a dreamlike quality to the day. Don't make any decisions while you're like this.
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