my son is suffering from cp

Cara Everage wrote:

Hi Shelly...Just saw your post about your childs legs and the great Dr. If you wouldnt mind I would like to speak with you. My son is 12 yrs. old and has CP. To date he has had about 81 different surgeries and we have had a horrible time with his left leg. We are desperate at this point. He is miserable and I cant stand to see him in so much pain and becoming overwhelmingly depressed. Please if you can find the time...I would greatly appreciate talking to yoy more about this. my email is mceverage@woh.rr.com
Thank you
Cara

cara im sorry its been a while had a alot going on.. iwrote yr e-mail down will do that today get in touch.. through this we did find some great drs.i will give u names to help..if anyone is interested i wrot a childrens book im trying get get published i have a publisher, u can read more if u go to my space and search for anthony garton it will explain about my book..i will check this site more often im sorry.. shelley in florida

Lori wrote:

Hi Shelly-
Just writing to see how you and Anthony are doing. Have you been up to DE lately?

hey lori anthony and i were back there in nov. we should be coming back soon he had another surgery up there last aug.. which went well.. maybe some when i come up there ill get to meet you.. anthony has a myspace about a book i wrote to change the way people look at people who r different lets hope i can get that out this year.i will keep in touch shelley garton in spring hill fl.. p.s. thanks for asking

There is a website call http://www.cpparent.com that has the latest CP news and discussion forums for information and support.

Hi everyone! My name is Marshall and I am a 33 year old male with CP and have a blog I do about living with CP, family concerns, service dogs and basically my blog covers all aspects of CP from an insiders point of view. There you will find many articles that offer all kind of info about treatments, conventional and alternative and basically how I have overcome many obstacles of CP. Theres even a newspaper article in my intro so you can know I'm the real deal.http://hubpages.com/hub/m arshallscp

Anthony and I are heading back to delaware for another surgery we will be there from nov.9 09 till nov 19 09. Hope all is well with everyone. any new c/p treatments going on??? k.i.t.shelley gaton

info cerebral palsy: www.ulzibat.com

My Son 8 months old, born with severe cp, dr said we will loss him anytime;Now, we try our best to accompany him till his last moment. i love you forever!

Don't have CP myself, but I am very friendly with a young woman who does. Her name is Julie McElroy and she is truly inspirational.
Julie's a twin (her sister doesn't have CP) and is 25. In the last 8 years she has sailed the Atlantic as a crew member for the Princes Trust, trekked 400 miles across the Andes for Beyond Boundaries, climbed Ben Nevis (Scotland's highest mountain) and done many other amazing things such as setting up her own business. Julie is a wonderful example of someone who never lies down to her condition. She is planning a walk across the Dolomites this year and then a cycle across the Gobi Desert in 2010. I encourage you all to Google this remarkable young woman.
Regards,

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www.hwize.com/russellw

tommy wrote:

My Son 8 months old, born with severe cp, dr said we will loss him anytime;Now, we try our best to accompany him till his last moment. i love you forever!

Sorry to hear that there not always right.. enjoy everyday.These children are a blessing from god only the best people are givin this gift. They are truley a gift from god. If you always look at it that way I believe it helps ,I always say I would take my Anthony this way then never have him at all. Our prayers are with you and your family shelli garton and family

aep8344 wrote:

Don't have CP myself, but I am very friendly with a young woman who does. Her name is Julie McElroy and she is truly inspirational.
Julie's a twin (her sister doesn't have CP) and is 25. In the last 8 years she has sailed the Atlantic as a crew member for the Princes Trust, trekked 400 miles across the Andes for Beyond Boundaries, climbed Ben Nevis (Scotland's highest mountain) and done many other amazing things such as setting up her own business. Julie is a wonderful example of someone who never lies down to her condition. She is planning a walk across the Dolomites this year and then a cycle across the Gobi Desert in 2010. I encourage you all to Google this remarkable young woman.
Regards,
----------
www.hwize.com/russellw

Wow you go Julie c/p so from mild to very sever its nice to see some people with this condition enjoy life like it should be Im sure shes an inspuration to all.Lets us all know how she does. God bless her and our prayers to her.. The Gartons of spring hill fl..

We went through Dupont and Dr Dabney for a backlifin pump last fall the man went above and behond to get our son Henry on the right track. They put it in and one of the side effects is the kids stop peeing. We had to remove the meds and wait for him to start peeing again. Finally put the meds back in in march upping the dose slowly to everything is going well for now. Dr Dabney is a great man the best!!!

dont kn0w h0w to start

Rhodora what exactly do you mean how to get started??At the drs.. office or seeing dr. dabney let me know..shelley

Hi,

I have a 1 year old son who is diagnosed with CP. His milestones are delayed, he is still not able to turn, Sit, Crawl & walk. All the tests that we carried out (MRI, EEG, SSEP, Blood test etc) were normal. I have recently relocated to Plano (Texas). It would be great help if you could guide me a Physiotherepy centre & Ped here in Dallas.

Please also guide if I could pursue some other treatement here.
Thanks!

shally, Dont be to upset being only one c/p runs so different it does delay their abilietes. But dont count them out our was 6 when he first sat up it was a milestone but he did it. Just keep up a positive attitude and believe that will concore all.It is a very hard and trying road but never give up..If you need anything else please get in touch. Also for all of you with disabled children under 18 please look in to make a wish these children deserve it, its an amazing organization. Shelley

hey there, my name is Katie Collinswood and iam 17 years of a age and I have CP. I have had CP sine birth. I have got ataxer C.P. I can walk and I have learnig difficuties. I nerly died when I was born couesd be lack of oxegen at birth and I nelay ended up in a wheelchair. Iam going to collage in september to studdy Foudation studdys- A diplomer in persnol progess. By the time I'm 20 or 21 I would like to live independaty with help.

katiex

Hi there!

I am a director of a clinic located in Toronto, which helps children, adults and seniors who have Cerebral Palsy. I invite you to take a look at my blog at www.enabledkids.ca , which offers, therapies and advice for parents and caregivers.

The Journal of Pediatric Orthopedics reports non-ambulatory children may be deficient in vitamin D and should be evaluated prior to any bone surgery. However, experts warn that children should not take vitamin D supplements without their pediatrician’s recommendation since it can interfere with, or be adversely affected by, other medications. For more information about vitamin D needs for children with cerebral palsy, please read http://www.cpfamilynetwork.org/medical-resear...