Weight gain!!!!! and inability to lose weight.

Well......All of the above. I have gained 25 pounds, and I am guilty of not working out and eating processed GF foods. Nevertheless, I don't over eat. I know my metabolism is slow, my thyroid, although it is in the low "normal" range, I have low thyroid symptoms. Boby temp of 96 most of the time in the a.m. Low 97 temp during day. and thinning eyebrows the last half has disappeared and they use to be thick and more. But because the thyroid falls just inside normal, all the other symptoms are ignored by the doctor. Thyroid problems are linked so many times to Celiacs, so I just wish the doctors would be more proactive in treating the symptoms NOT the statistics.

The weight gain tells me that I am healing. I am not completely healed yet so I may gain more weight as I become more serious about my diet. I am going to the vitamin cottage tomorrow to talk to a nutritionist about raising my metabolism. I am accustomed to eating a lot because when I was ill I ate every four hours so I would not faint because I did not absorb nutrients and calories. My body still craves the 4000 calories, or more I consumed daily when I weighed 115 lbs. Most of those calories were in Starbucks coffee form. I have to stop taking in treats to replace my gluten, exercise more, and raise my metabolism. I would strongly suggest finding herbs, foods and a life style that will raise metabolism.

Emma wrote:

Has anyone gained weight from cd as all medical reference i have read says you lose weight. With me this has not been the case my weight fluctuates quite bad. Even though i hardly eat and take regular exercise I dont seem to be able to lose weight.I have been following a cd diet now for the past nine months. I have not lost any weight i have gained it also my symptoms dont really seemed to have improved. Its so frustrating i have had my thyroid checked and that seems to be fine. Another thing is my body seems to reject iron supplements i have had to stop taking them as i come out in massive bruises. Has anybody had similar problems.

Hi Emma, just coming across this and I know it's a few years later but I hope you see it. I am going for testing soon, new GI Dr is pretty sure I have CD(also anemic, hypothyroid, etc). I have always been on the anemic side, even as a kid, but can't take iron pills either. This past year I started taking something called Floradix (it is a drinkable form of iron with Vit B's) on the suggestion of my naturopath and it is finally helping. First thing in over 30 years to help my ferritin levels with no GI distress.

Oh god I thought I would come on here and find the answers, I have been diagnosed since Feb 2012 and since going gluten free I have gained 3 stone in weight.I am so depressed I have never in my life been this heavy, so I started slimming world with lots of healthy food ect. Oh no every week while others were celebrating there losses I got on the scales I was heavier. So fed up at one point I thought about giving up the GF diet. When will this end !!!!!!

As everyone else has commented, I too a former skinny size 6 (at 6 ft tall) started to gain weight before dx of celiac. At a rate of 5 pounds per week, I was 50 lbs heavier when I finally got dx of celiac. That was in Nov 2008. This is my theory, with my limited medical knowledge (in grad school to become a nurse practitioner). The body sees any form of insult, whether it be gluten or artificial sweetners, flavors, preservatives...as toxic waste. People who normally can handle MSG, wierd additives can usually handle gluten and are not celiac. The small intestine is where this auto immune disease attacks and after years of fighting itself over gluten it cannot take any more insults and will either purge (waste out) or store...first, toxins go through the liver to be detoxified and then if the liver gets overloaded (you eat gluten, breathe in flour, use shampoo that has wheat germ in it, eat a piece of store bought lettuce because they use modified food starch to preserve it) the liver starts dumping toxins into our fat cells. Where does excess sugar go if the liver can't store it for cellular use? Fat cells. Where does excess calories go when the liver can't turn it into energy for our body to use? It turns it into fat and stores it. Ever notice how when you wpork out at a slow pace past 20 minutes you feel ill? The fat cells become active in dumping into our bloodstream what we need for energy and what is in that fat? Toxic waste. So this is what you all need to do and it isn't easy. Work out three times a day in the beginning only up to 20 minutes doing weight lifting for part, cardio, and stretching floor type exercizes. Then really sit down and look thru your cupboards and throw away anything containing modified food starch (made from wheat) MSG, and other preservative foods. Shop once a week for fresh vegetables and eat them raw. Limit cooked food, eat raw nuts, dried and fresh fruit (no corn syrup) teas, etc... Stock up on lara bars they are great frozen and throw em in your car. Greek yogurt is also great. Stay away from prepackaged foods as much as possiblle and look for hidden ways of contamination. If my family cooks a regular pizza in our oven in the house I will gain weight. Anyway, if any of you would like to email me directly for info on my research please feel free. I am in school and busy but promise to reply as soon as I can... In the meantime buy some beautiful new clothes and enjoy your health because the weight is not everything!

My email is kelly_200159@yahoo.com

I am thirteen and was diagnosed with coeliac disease at birth. i have also had trouble with my weight. My GP told me mainly to make sure to drink plenty of water, stay on the gluten-free diet and also to make sure to do plenty of regular exercise. I am now the average weight and am happy.
also it might help to get you blood sugar checked.
hope this helped :)

I just want to thank everyone. I was diagnosed about 5 months ago, until about 1 month ago I was still losing on average 1/2 to 1 pound a week, all of a sudden I'm gaining 1 pound a week, I know I had lost a ton of weight, but gaining a pound a week is going to totally send me over the edge. I'm not a big eater and a very healthy eater so this is very frustrating. I know that all the GF breads and treats are very high in calories so I keep my carbs to a minimum, so I really couldn't understand what was going on, but after reading all of your posts, I guess it's all part of the disease, a part which my doctor forgot to mention to me

wow glad i found this site , I to have gained wieght have had cd for 3 years and have gained a total of fifty five pounds i am also been on predisone which is a steriod for 3 years as well for other auto immune diseases ,i can not lose a pound i jazzersise five days a week and i have walked 35 miles in a week to find i didnt lose a pound and i ate healthy fruits vegtables ,fish anyway ate very healthy not one pound last two weeks gained ten more pounds what is going on . iam going to mayo clinic in april i will be seeing a dietician for this issue so i will repost what i found out when i return and hopefully i will have some anwsers.

I thought I am going mad. Can't fit in any of my jeans. I have been diagnosed id October and since then I have gained 7kg ( not sure how much ponds is that- but it is equivalent to 7 bags of sugar). Previous to my diagnosis I have sufered last 20 years with burping, stomack bloating and being sick 4 out of 7 days a week ( in the evening I would visit the toilet and empty my stomac with undigested food - horible).
Since going gluten free I have not been sick at all, and as a result I have gained weight. I do excersise 4 times a week and eat really healthy.
What to do?

I thought the book: Why We Get Fat: And What to Do About It (Vintage) by Gary Taubes (Paperback - Dec 27, 2011) was very interesting. He argues that cutting calories and exercise are not effective for weight loss but cutting carbohydrates is. I'm thinking about trying the low carb diet now.

been diagnosed since november of 2011, dr's have no clue of weight gain, trying juicing, for dinner only, no alcohol, and if that doesnt work, going santa barbara, i've been working out & eating well for 18 years, cheat on weekends occasionally, cant deal with this weight gain, desperate, anyone familiar?

Been on gluten free diet for 2 years have put on 2 stone and hate it used to do a lot of jogging to keep weight down but it doesnt work any more, really dont eat a lot why does this happen,saw doctor recently and he was happy i had gained weight im not happy at all.