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Chelation questions

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Ivar

Stavanger, Norway

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#1
Oct 26, 2007
 
I've some questions regarding chelation as an alternative treatment for autistics.

1. How possible is it to get a heavy metal level test from a laboratory unrelated to anything DAN! or Generation Rescue. It often sounds like most of the tests are sent to Laboratorie Philippe Auguste in Paris, France.

2. Regarding Laboratorie Philippe Auguste, do they market alternative treatments for cardiovascular disease? Have they ever been related to marketting of chelation as an alternative treatment for cardiovascular disease?

3. Have autistics who have received chelation ever had anything specific to their development that is not seen in autistics who have not received chelation?

4. Is it commonly accepted in the medical community that autistics don't excrete heavy metals in the same levels as others do?
friend

AOL

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#2
Oct 26, 2007
 
alls I have to say on the topic is
not all kids have heavy metals- mine does not nor do I (wasn't stopping just with my kid. I needed to know about me as well)

not all tests are sent any where but conducted in the office of the DAN! doc or their basement lab. many do not go for a second opinion on test results as such.

our tests was not done by a DAN! doctor and Generation Rescue was not even around then. other doctors can do this testing, that are not going to sell you biomedical things or have an agenda.

chelating has been around for a long time, and some heavy metals do need to be removed from the body. however id it is so some children with autism cannot excrete such things normally, then their whole life they'd need to be careful of exposures to many things.
Ivar

Stavanger, Norway

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#3
Oct 26, 2007
 
I just heard that mail-order tests are more dubious and way more expensive than those you can do at local hospitals.
friend

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#4
Oct 26, 2007
 
most also aren't covered under insurance, either. many DAN! docs wont even take insurance or bill to them, it's mainly out of pocket (I'd like to see those IRS claims) and first hand knowledge, some attempt to bill under chiropractic codes and in reality, it's DAN! services.

the thing is, you can watch any medical show. many doctors can and know how to chelate and if heavy metals are present, they often do. why a specific DAN! doctor is the only one is beyond me.
Dogen3

Indianapolis, IN

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#5
Oct 27, 2007
 
Ivar wrote:
I've some questions regarding chelation as an alternative treatment for autistics.
1. How possible is it to get a heavy metal level test from a laboratory unrelated to anything DAN! or Generation Rescue. It often sounds like most of the tests are sent to Laboratorie Philippe Auguste in Paris, France.
In the U.S. there are many labs that can do this. Not all the smaller labs have this capacity, but my sons doctor uses two labs that are both local to us.
Ivar wrote:
2. Regarding Laboratorie Philippe Auguste, do they market alternative treatments for cardiovascular disease? Have they ever been related to marketting of chelation as an alternative treatment for cardiovascular disease?
After an extensive search of the internet (5 min. on google) I review their web page and did not see anything. Of course that is not conclusive evidence that they are not.

http://www.labbio.net/pages/index_vh_eng.htm

I also found I was referred to by an erkolos on aspiesforfreedom.com
Ivar wrote:
3. Have autistics who have received chelation ever had anything specific to their development that is not seen in autistics who have not received chelation?
That is a very interesting question. I too would be interested in the answer. You might be laying the groundwork for some good research.
Ivar wrote:
4. Is it commonly accepted in the medical community that autistics don't excrete heavy metals in the same levels as others do?
That is a tricky question. I have seen studies that say this, but as far as what is generally accepted... I have no idea. By 'medical community' I am assuming that you mean the portion of the medical community that deal with a lot of cases of people with autism. The medical community at large probably knows less about autism than I do about mongolian poetry.
Dogen3

Indianapolis, IN

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#6
Oct 27, 2007
 
friend wrote:
alls I have to say on the topic is not all kids have heavy metals- mine does not nor do I
I am very interested in what sort of test was done. One of the problems with metals is that most do not stay in your system long after exposure. A normal body will do a pretty good job of eliminating them if the exposure is not so high that it is toxic. The theory (actually it is a hypothesis with some data in support.... to many people throw around the word 'theory' in a manor that a scientist never would) is that with individuals with autism the metals are not delt with by the body in as efficient a manor which allows for them to accumulate. Different metals accumulate in different places. Lead likes bones and bones of a person today has about 100x the lead content of someone 150 years ago. And that is a "normal" person. Mercury likes the brain and liver.

My point is (and I do have one.... I promise!) that a long time after exposure people do not necessarly test high for metals. A person could have a LOT of them accumulated in the brain or liver but you could not tell by any of the more common tests. There are only two ways to know for certain.... biopsy (anyone want to give a brain tissue sample?.... no? me neither!) or by a chelation trial. There is now actually a third way: the Porphyrin Analysis test.

Other tests work well with a recent exposure (hair test, simple urine test, blood tests) but will not show positive for high ACCUMULATE levels that are not circulating around in the system.

Also, like any other field there are good biomedical docs (DAN, etc) and poor ones. I have been to regular docs and felt like they were doing things just to get more money out of me (or my insurance companies). Going to someone with a good reputation is important.
Dogen3

Indianapolis, IN

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#7
Oct 27, 2007
 
friend wrote:
most also aren't covered under insurance, either. many DAN! docs wont even take insurance or bill to them, it's mainly out of pocket (I'd like to see those IRS claims) and first hand knowledge, some attempt to bill under chiropractic codes and in reality, it's DAN! services.
Illegal billing is illegal billing. Many services of a DAN doctor are covered under insurance. Office visits, labs and tests, etc. Only certain interventions may not be covered.

What is important to insurance is the Diagnosis. If you are looking at gastrointestinal or immune issues you can do so with either a preliminary Dx OR a R/O code (where you are testing to try to rule out something that is suspected).
friend

AOL

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#8
Oct 27, 2007
 
lead poisoning is neurological damage as well as renal disease, cardiovascular effects, and reproductive toxicity. not sure about bones. most heavy metals are neurological damaging, and lead to death. lead poisoning if you survice, leads to neurological damage that is not reversible. all toxins could and would be found in the liver, for that's what the liver function does.

fact is, all heavy metals can and often do lead to death.
Dogen3 wrote:
<quoted text>
I am very interested in what sort of test was done. One of the problems with metals is that most do not stay in your system long after exposure. A normal body will do a pretty good job of eliminating them if the exposure is not so high that it is toxic. The theory (actually it is a hypothesis with some data in support.... to many people throw around the word 'theory' in a manor that a scientist never would) is that with individuals with autism the metals are not delt with by the body in as efficient a manor which allows for them to accumulate. Different metals accumulate in different places. Lead likes bones and bones of a person today has about 100x the lead content of someone 150 years ago. And that is a "normal" person. Mercury likes the brain and liver.
My point is (and I do have one.... I promise!) that a long time after exposure people do not necessarly test high for metals. A person could have a LOT of them accumulated in the brain or liver but you could not tell by any of the more common tests. There are only two ways to know for certain.... biopsy (anyone want to give a brain tissue sample?.... no? me neither!) or by a chelation trial. There is now actually a third way: the Porphyrin Analysis test.
Other tests work well with a recent exposure (hair test, simple urine test, blood tests) but will not show positive for high ACCUMULATE levels that are not circulating around in the system.
Also, like any other field there are good biomedical docs (DAN, etc) and poor ones. I have been to regular docs and felt like they were doing things just to get more money out of me (or my insurance companies). Going to someone with a good reputation is important.
Ivar

Stavanger, Norway

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#9
Oct 27, 2007
 
I thought all heavy metal tests were porphyrin tests. If it was by hair it would be inaccurate, I don't know about blood but I think I heard something negative about that too.
friend

AOL

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#10
Oct 27, 2007
 
hair tests for some heavy metals can detect the length of time of poisoning
Ivar

Stavanger, Norway

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#11
Oct 27, 2007
 
Dogen3 wrote:
I also found I was referred to by an erkolos on aspiesforfreedom.com
I know that guy very well.

Yeah it is me searching for clues regarding chelation, finding that I have drawn conclusions too fast now and then.
Dogen3

Indianapolis, IN

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#12
Oct 27, 2007
 
friend wrote:
lead poisoning is neurological damage as well as renal disease, cardiovascular effects, and reproductive toxicity. not sure about bones. most heavy metals are neurological damaging, and lead to death. lead poisoning if you survice, leads to neurological damage that is not reversible. all toxins could and would be found in the liver, for that's what the liver function does.
fact is, all heavy metals can and often do lead to death.
<quoted text>
Absolutely. In enough concentration they are fatal. There is also evidence (don't ask me to quote it unless you REALLY want to know because I would have to go looking for it) that pb and hg work in combination and can do more damage in smaller doseages than either could at well over twice the level.

EPA guidelines are for individual toxins and no one really knows what the guidelines should be for combinations.

Just something else to worry about as our planet becomes ever more poluted.
Dogen3

Indianapolis, IN

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#13
Oct 27, 2007
 
Ivar wrote:
<quoted text>
I know that guy very well.
Yeah it is me searching for clues regarding chelation, finding that I have drawn conclusions too fast now and then.
The human brain, either autistic or "neuronormal" is a conclusion seeking device. Not having 100% of the information will not stop the brain from jumping ahead to conclusions. That is pretty normal. I have certainly found myself having jumped to conclusions to quickly and paying the price for it!
Dogen3

Indianapolis, IN

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#14
Oct 27, 2007
 
Ivar wrote:
<quoted text>
I know that guy very well.
Yeah it is me searching for clues regarding chelation, finding that I have drawn conclusions too fast now and then.
Keep us up on what you come across. I will be glad to share what I know and I will TRY to keep facts and opinions clearly seperate.

Of course all my opinions are absolute facts! ha ha ha ha!
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