Fast Facts About Lupus

I have had SLE for allmost 5 years now and after trying many meds have found natural ways to control my disease, nayone who would like their life back please email me at Mmgarner6@aol.com for information on how my Lupus is 90-95% better!

God Bless

I have SLE going on two years. I take a lot of meds. I would like to have my life back.

I HAVE SLE LUPUS ALSO, NOW FOR 4 YEARS AND i AM COPING WITH IT THE BEST I CAN. I TAKE ALOT OF MEDS ALSO AND I EXCERCISE ALSO AND THE EXCERCISE HELP TO KEEP ME GOING AND GOOD FAMILY AND FRIEND SUPPORT. AS LONG AS YOU GOT JESUS IT WILL BE ALRIGHT. HANG IN THERE WE WILL KEEP ALL LUPIES IN PRAYER. MY GRANDMOTHER HAD LUPUS AND DIED OF LUPUS COMPLICATIONS MY MOTHER HAS LUPUS AND I AM THE THIRD GENERATION OF LUPUS AND IT RUNS IN MY FAMILY VERY DEEP YOU NEED FAMILY AND FRIEND AND JESUS TO GET THROUGH THIS DISEASE CAUS IF YOU DON'T HAVE THAT IT MAKES LIFE VERY HARD. HAND IN GOD WILL WORK IT OUT SO THAT YOU CAN HANDLE IT.

I am inviting all of you who participate in this website to please visit the website and find information about the ALLIANCE for LUPUS RESEARCH which was formed in 1999. The ALR has become the largest private source of funds for lupus research in the country. The mission is to support research into the prevention,treatment and cure of lupus. The funds are raised through a Walkathon program to raise dollars and also to raise awareness about this disease.
100% of all money raised by walkers and sponsors in this walkathon effort go directly to research. Please take a few minutes of your time to visit
www.lupusresearch.org
after you visit the site and see what the ALR is doing..ask yourself ..How May I Help?
If you live in an area where a walk is being held get yourself your family and your friends involved !!
Thank you very much for your time to read this, now visit the website. ENJOY !!

Hello from a newbie!
Hi out there. I wanted to introduce myself to everyone. I’ve been searching the web for info about CONDITION and found this board. I’ve never thought about joining a board before, but after reading through some posts, I’m happy I did. I just want to say thanks to everyone for the support you offer here.

Hi I have been fighting with lupus sle since April of 06. In the last 3 weeks I am having to use a cane to get by. Work is hell because my boss doesn't understand what crippling is. I am almost at ropes end. No I won't do anything stupid but I am at a loss of where to turn. I have no support system. I am in Edmonton, Alberta. My family is one of those that if we don't talk about it it's not happening. So for you that have loving families, count yourself as one of the lucky ones.

Hi I was diagnosed with suposively rheumathoud arthritis abou six years ago doctors here in nevada would not continue my teatments here in nevada I was refered to univrsity medical center in Los Angeles and just a few weeks they disovered I have lupus it has been very depressing going from one disease to another I take a lot of medication I am always very tired I am trying to live a normal life but the aches and pains are horrible if any one out there can help me join a group support please do because I feel with no strength of figthing no more.

I'm a newbie,I have had SLE lupus for 6 yrs. now. I was diagnosed when I was 15 yrs old. I never knew much about it to begin with because I never did research until now. I just had a baby and pregnancy was hell, the lupus was worse than it's ever been.I always had some sort of problem that I never knew what it was about and now I know. If anyone has any easier way of coping with this disease please do tell because it's been a rough road and I'm a single mom having to go back to work soon. I go for my first appt. to see a rheumatologist in march. I don't know how much that will help but hopefully it does. Also anyone on disability for lupus? The information would help.

I forgot to post my e-mail address. Sorry. It's naomigonzales@yahoo.com. Thanks.

After many years of very elusive and confusing symptoms I was diagnosed with Lupus about 2.5 years ago. I also have Celiac Sprue. I take Plaquenil, Mobicox, array of vitamins and minerals and some herbal remedies on the advice of my rheumatologist. This is helping a lot. I eat a healthy diet and have managed to remain physicaly active. The massive infections have stopped. For most of my life I had been able to keep up with everyone else & even surpass most folks energywise. I now recognize that I may have been doing it out of sheer willpower. I don't look sick but I sure as hell don't feel well. I lost my job about 6 months ago along with my long term disability benefit. My regular medical benefits continue for 9 more months. Now I'm so achy and tired that I fear that I'll never be able to have a normal life or hold down a full time job again. I literally fall asleep in the afternoon and sometimes sleep for up to four hours. I'm talking deep sleep with complete with dreams. This is in addition to a full night's sleep. I would sure be interested in hearing from Debbie about natural ways of controlling the disease. I'm so exhausted that I'm at my wit's end. pkirkey@yahoo.ca.

Debbie wrote:

I have had SLE for allmost 5 years now and after trying many meds have found natural ways to control my disease, nayone who would like their life back please email me at Mmgarner6@aol.com for information on how my Lupus is 90-95% better!
God Bless

Debbie wrote:

I have had SLE for allmost 5 years now and after trying many meds have found natural ways to control my disease, nayone who would like their life back please email me at Mmgarner6@aol.com for information on how my Lupus is 90-95% better!
God Bless

I am a 48 year old female and was diagnoised with lupus 4 1/2 years ago. I would like to know natural ways to control disease.

hi to all those who are dealing with Lupus>I have been digignosed in 1990 ,yes it is very painful.Not sure how to deal with it myself.There is no family support although im #5 out of 12 im the only one with it and they dont understand what it is like ..It there is hepl for this i would like to know.
thank you.

Debbie wrote:

I have had SLE for allmost 5 years now and after trying many meds have found natural ways to control my disease, nayone who would like their life back please email me at Mmgarner6@aol.com for information on how my Lupus is 90-95% better!
God Bless

I know of a new product that is gel-based and contains Chondroitin Sulphate,Glucosamine Sulphate, MSM, and Celadrin. Each of these four ingredients has been found to maintain joint fuction and health. Now all four are in an easy to assimilate gel pack. email me daveosm@yahoo.co.uk for more information

I really don't know what to expect from Lupus. I was diagoned 2006 with Lupus. I got sunburned and it caused a rash and then sores. My Primary care physcian sent to the dermotolgyist and from there he sent to a rheumathoudist and diagnosed me as having skin lupus. She put me on medication for a year. Said I did not have full blown lupus but should be treated for 6 moths to a year. What should I expect next?

Hi, I found a web site that has many links for lupus information on it:
http://rdoctor.com/symptoms_disease/content/v...

my fiancee has it so bad, i feel helpless, does anyone know what vitamins are best besides all his meds

Is there anyone out there with lupus symptoms and a negative blood test? I also need natural ways to control this, right now only medrol helps some. Thanks

pam wrote:

my fiancee has it so bad, i feel helpless, does anyone know what vitamins are best besides all his meds

To whom it may concern, I am 42 years old, I was diagnosed with lupus in aug 2004, my life will never be the same. Lupus sle is so painful and debilitating, there are some days that I wanted to curl up in my bed and die. My best advise is to treat your lupus natually, start by organic juicing, fresh fruits and veggies, use a very potent omega 3 fish oil, liquid vitamins, and detoxify your body with a colon cleanse. go to a health food store, and ask a sales assistant if you have any questions or concerns. and lastly , get rid of your junk food, and processed food out of the fridge, your body wants vitamins and antioxadents to repair the damaged cells from the lupus, thats the only way to treat your lupus naturally, and hopefully go into remission. Take care.

shirley moore wrote:

I really don't know what to expect from Lupus. I was diagoned 2006 with Lupus. I got sunburned and it caused a rash and then sores. My Primary care physcian sent to the dermotolgyist and from there he sent to a rheumathoudist and diagnosed me as having skin lupus. She put me on medication for a year. Said I did not have full blown lupus but should be treated for 6 moths to a year. What should I expect next?

Nothing else just stay out of the sun and wear sunscreen

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