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Angioedema

Angioedema. Please comment.

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Chris
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Judge it!
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#1
Apr 4, 2008
 
Hello. My girlfriend has had Angioedema & idiopathic urticaria for about 10 years now. Her symptoms were common to most. The occasional hive break out here or there. When I met her about 1 year ago, she would get a hive maybe once a week to every 2 weeks, and only 1 at a time. Usually not too large and would last for about a day or 2. She had no problem dealing with it. Since November of last year they have gotten progressively more frequent and larger. Since January 14, 2008 she has only gone 3 days without having a hive. Now it’s usually more than one at a time lasting 3 days or longer and getting larger as it travels. She is only able to work 1-2 days a week if she's lucky. They are very painful and itchy and causing her to fall into a depression. She is on a cocktail of antihistamine that seems to have zero effect. She has tried a low histamine diet which did absolutely nothing......If anyone has any answers, cures, or remedies that seem to work for them, we would greatly appreciate the advice......We would also love to hear from people who have similar symptoms and how they deal with life/work on a regular basis. Thank you.
Peter
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#2
Thursday Jul 17
 
If you girlfriend has HAE,then check out the website www.primaryimmune.org . And have her see an immunologist.

There is a new treatment coming on the market very soon, called "Berinert P" for HAE. It's from a company called CSL Behring.
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