Solution: I'm thinking some form of stem cells, pluripotenet, would be necessary to heal damaged tissue/organs to begin with -maybe multiple treatments. From there, a few supplements out there claiming to lengthen telomere’s or at least lengthen the short ones might work, but so many questions arise. Also, how might cancer, from these supplements potentially, or higher chances, affect you if you are getting stem cells, with short telomeres.(Studies say shorter the telomere’s, higher the chance you will develop cancer/genetic mutations)*. We're between a rock and a hard spot, but I think we may need to roll the dice. Any other suggestions?
*http://anti-aging-now.com/telomeres/2011/07/t...
*http://drdaveunleashed.wordpress.com/2011/04/...
* http://www.nytimes.com/2011/05/19/business/19...
Let’s get a team out there organized, work together, dedicated, sharing resources, and knowledge to conquer this…sufferers, sufferer’s family members, doctors, scientists, congressmen, senators, believers, anyone!!! Google groups??? Any ideas? Together we can achieve success!
Comments (Page 21)
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Bump! Sign it folks..... |
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Those symptoms sound to me like you might have a gluten issue. Dryness in various areas can be a gluten issue, Sjogren's (lots of dryness to a problematic level) is an autoimmune disease, and like most autoimmune diseases (such as DM1) has a MUCH higher incidence in celiac disease. I've heard of various hypersensitivity issues (like your skin tender areas) with this. Digestion issues are quite common, as are circulation problems. The way that will demonstrate this connection most clearly to you would be a month or 2 trial off _all_ gluten. Better yet would be to get labs before doing it (gliadin antibodies IgA/IgG and TTG abs with a total IgA, as well as HLA typing for celiac (DQ2 and DQ8)), but don't wait for the results and don't let negative results deter you. Non-celiac gluten sensitivity won't turn any of those tests positive, and is many times more common that celiac disease. If you add up celiac disease and non-celiac gluten sensitivity, you get about 7-8% of the population - about as common as left-handed people. I don't mean to dismiss your extensive research into the actions of accutane, and it may have triggered a condition that you had some susceptibility to, but I think you may have a more immediate benefit from this avenue. The only way I've heard of to lengthen telomeres is some new neutraceutical that costs $200+ a month and how would you even know if it's really working before you dropped a big pile into it? DrS. |
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Iknow there are more then 15,000 that have damaged by this drug! Sign it people
http://www.change.org/petitions/tell-roche-ph... |
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Toronto, Canada |
I took Accutane for 6 months and within a year I had severe bladder and urethra pain that has been devastating to my life. I am in severe pain alot of the time. I am struggling for a diagnosis. The docs can't seem to figure out the cause of my symptoms. My family are the ones that have made the suggestions that Accutane could be the cause.
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Have they checked and tested for interstitial cystitis? Find a good Urologist and yes Accutane caused it. |
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Okay, so you're saying that Accutane causes shortening of telomeres? Which...essentially would cause restrictions on cellular divisions throughout the body and ultimately shorten our life span in the end due to quicker degeneration of our bodily organs?(Which is what you are saying causes most of Accutane's side effects.)
My question to you is, then why have so many medical professionals taken the drug? Knowing these risks? My dermatologist himself told me that he has taken 3 courses of accutane to rid himself permanently from acne. He does not look prematurely aged, he looks extremely young actually. Also, he does not have any medical problems (not that I know of anyway, he looks quite healthy and fit.) Millions of dollars have gone into this drug and yet the mechanism of action has not been discovered but you...yet through your internet studies have discovered what it does to people. I...I just can't believe you, I hope you understand why. |
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Today my dermatologist recommended accutane. My first thought was "sure why not?", the only thing that stopped me from saying yes was having to get my blood checked every month. After reading your article accutane is a no brainer.
"So what are you taking for acne?" "Cancer treatment." Please tell all the big medicinal figures about your findings. The way this drug works reminds me of the film "I Am Legend". Where a cure for cancer is found then everyone gets mutated into zombie things. Please tell everyone. |
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How do you feel about other supps like Hyaluronic acid to treat the joint problems and B vitamin combos in addition to what you have here? |
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Since: Dec 10
Leiden, Netherlands |
There's a reason doctors are less likely to get side effects from accutane treatment: they are usually more informed about their own health status BEFORE they start treatment. This includes checking for vitamin deficiencies, medical histories and allergies. If they find some underlying weakness in their body they'll most likely fix it before going on accutane.
How many ordinary citizens can: A) order a full blood test and B) correctly interpret the results? So your doctors suffer from professionally induced bias. They are more aware of their own health than most humans. |
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Australia |
Plenty of Doctors smoke knowing full well the risks!! Many on accutane had no idea what they were getting into.
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Since: Dec 10
Leiden, Netherlands |
Also:
http://www.ncbi.nlm.nih.gov/pubmed/10951254... Quote: "The rapid isomerization of 13-cis retinoic acid (accutane)to high levels of all-trans retinoic acid (atra) was a sebocyte-specific event, as no significant isomerization of 13-cis retinoic acid to all-trans retinoic acid occurred in HaCaT keratinocytes." I find this to be a significant find.. in 'ordinary' skin cells accutane doesn't get processed...yet in sebocytes it swiftly translates into the most active form. Sebocytes are basically oil gland stem cells..(I'm sure that's not a 100% correct analogy so bear with me)...accutane is selectively converted to the active component atra only in sebacious glands and not in ordinary skin cells. This means that it WILL impair sebum (oil) production, but that it might not alter the direct function of all other skin cells. oh and btw poppycc: accutane is NOT an addiction. |
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Mississauga, Canada |
I just stopped taking accutane a week ago after 4 months.. And in the last 24 hours my acne has flared up a lot!! Is it coming back? Or does my skin need to "adjust"? Worried!
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Southampton, UK |
I took a high dose of Roaccutane for several months and it caused serious psychiatric problems. Though I recovered afterwards, I am still prone to anxiety and some depression. I also had a lot of dryness, though this cleared up. However, 20 years later and I'm experiencing dry eyes and dry mouth and nose. I've been investigated for Sjögren's syndrome, but there's no evidence of systemic inflammation and no joint pain, etc. I might have Sjögren's - BUT, what if it's related to the Roaccutane? Is this possible? The acne never came back.
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Kuwait, Kuwait |
I,ve been with the roaccuttane for 4months now, i still have 2months to go to finish the course...so far Im having only dry lips...hoping for nothing more worst side effects...I got scared of what i've read...but only accutane made my face cleared...just having worries that my zits will come back after the treatment...its really expensive...
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Worth a shot?
http://www.rctherapy.net/ |
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I just want to point out, and I'm sorry if anyone already has, how obvious it is when people representing the pharm companies come on here and try to discredit NCC. Think about it, would you get all on someone's a** about their "internet research* just because a drug worked for you? No.
I've gone through a lot of this thread and it seemed like most people were just attacking NCC's level of expertise or his methodologies...but not very often would they hit on his actual research (some did...I'm not sure if they work for the pharm companies yet). |
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Stop taking it NOW and take vitamin E. Having acne come back isn't worth taking more poison. |
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Tell me when this thread is updated: |
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