Posted in the Montrose Forum
Comments (Page 7)
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I purchased the Rebuilder when it first came out, and use it each evening. ALA also helps, as does GNLD Super B (natural time release) to rebuild the nerves.
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Have you tried reflexology? |
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My husband massages (very gently), helps a little. I take Neurontin. which I found to be better than Lyrica. I use I use Aspercreme Rollon. It helps and you wll get immediate short term relief. |
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I really appreciate all the posts on here. I have been suffering from neuropathy in my feet for several months and it is getting increasingly worse. I've figured out from the posts my Neurontin dose of 100mg 3x a day may need to be increased as doesn't seem to be working anymore. I will try some of the other things I've seen on here. God bless all you suffering from this wretched condition, it really does drain you and change your life.
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Hey, Debbie, I'm on pretty much the same as you are and have had the same results. I saw a peripheral neurologist for a very long time, and he was able to help me out a lot. Hope this helps, you'll be in my prayers! |
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Has anyone used the rebuilder? |
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My husband suffers from neuropathy from the base of his skull down his neck, arms, sides and across his back. At night is when his pain is chronic. His arms shake uncontrollably and jump up off the bed. His back, he says it feels like his skin hurts. He was on the nuerotin, but he suffered severe side effects and had to go to the ER to have the drug flushed from his system. Hes now on a muscle relaxer that offers no relief what so ever, it doesn't even help him sleep. My husband suffers from heart disease and has a very low % of his heart and the stress of not getting any rest from the pain is worsening his heart. If anyone has any suggestions, they would be greatly appreciated. God bless you.
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I seen this post...i was having all kinds of pain in my hands and my feet. My dr did alot of blood work, and found out that being anemic was causing my neuropathy...since i'm takeing 800 mg of neurotin twice a day, and on meds for being anemic...the pain has alost diminished..talk to your dr..other medical problems can cause neuropathy..good luck |
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I have neuropthy and it is horrible, I scream and cry all night, I have tried ever med and creams out there no relief at all.
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I AM ONLY 29 YRS OF AGE AND EXPERIENCING NEUROPATHY ALREADY, CAN'T SLEEP GROUCHY ALL OF THE TIME CAN'T DO NOTHING, LIFE FEELS POINTLESS EVEN THOUGH I HAVE THREE CHILDREN TOO WATCH GROW AND SUPPORT IF ANYONE CAN HELP PLEASE????????
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New Delhi, India |
hi my mum is suffering from burning sensation ,tingling ,numbness and she is diabetic .well i have found temporarily solution which gave her some relax
but looking for permanent solution |
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One poster mentioned that one should eliminate coffee from the diet as well as tea and alcohol since they reduce absorpton of Vitamin B and also shrink the nerve endings (or somnething to tha effect. I cannot now find the post to be sure tha is an accurate quote.) Upon reading that, I realized that the onset of my neuropathy occurred when I resumed drinking coffee after having been off it for 2-3 years. So, I think that poster gave good advice. I will go back to drinking Pero which is a tasty substitute for coffee and is sold at Whole Foods.
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It started in my right foot about four years ago after having knee surgery. I've seen two podiatrists, a orthopedic surgeon, a homeopath and a general practitioner. We've tried everything...herbs, oils, massage, orthotics, injections, Microvas, Ibuprofen, Gabapentin and other treatments that escape right now. The pain used to be under my right foot only. It's now in both feet, ankles and shins. I'm starting to get depressed because it effects every aspect of my life. I spend a lot of time on the couch because walking is too painful. I have health insurance but treatments are still too expensive. I'm not sure where this will go but I don't like it and thinking about how it can progress is worrisome. I wish all of you the best.
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Kesha i was prescribed neurotin for my migrains and my feet and it helped but the warnings on it are bad..its a seizure medicine that once it gets in your system it can cause seizures if you miss a dose and it will cause permanant damage to your brain cells slowly killing them off..my feet hurt and swell so bad i am in tears and cant walk i dont know what to do anymore and i have heart damage for chemo so i have to be careful of what i take anyone have suggestions?...rock_chick41106 @yahoo.com |
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I'm a 59 yr old male and although I have had 2 heart attacks I am in excellent physical shape having completed 825 visits to cardio rehab..but...I have PN in my feet and it is the most debilitating thing I have ever experienced! I wear flip flops 80% of the time. I was taking 4600mg of neurontin ( gabapentin) with little relief. It did take away the electric shocks but the pain is there 24/7. Somtimes I wrap my feet in wet towels at night so I can fall asleep. I soak my feet in ice water every night. Anyway....if anyone has any ideas. I've had this 6 years and it too is idopathic, meaning they have no idea why or from what I got it...Good luck to us all...I would love a support group in Los Angeles. My wife and family listen to my complaining but how could I expect anyone to understand this pain and discomfort if they can't feel it....Keep smiling
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i have very bad neuropathy in my feet a surgeon told me this after i suffered 9 yrs. of pain. i have been to 5 specialist and they all said there is not enough research done to do anything,i am now taking Gabapentin,but it does not help.what help me for a while is Tens.look it up on computer.you have to order it as i have not seen it in stores.it helps for a while.good luck
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just an update, finally got working which got me health insurance which got me test done, now i am exactly back at where i started. yes I have neuropathy now what? I am a middle aged person whos family is really getting tired of hearing me complain about my feet. They dont understand. The pain is so bad I have to lay in bed. I cant work, cant sleep cant do anything My whole life has changed. It feels like frostbite 24/7 and now its spreading up my legs and hands. 7 doctors later I finally got some real pain medicine, really makes life a little bearable.why is there no cure for this severely disabling sickness one tip is to use a heating pad very briefly, just to warm them up. By the way lost me job so there goes my health insurane!
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Unfortunately, there's no cure because we have no way to reverse nerve damage. Once it's done, it's pretty much done. The damage can be slowed down, perhaps, but the nerves will not be what they were. Neuropathy is really a matter of managing the pain.
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I'm taking lyrica and gabapentin. To be able to tolerate the pain at night, I take Vicodin. I tolerate it well, thank goodness. You might want to try it. |
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Hi I have neropathy in hands and feet Have been taking cymbalta for 3 years and hwas feeling wonderful no swelling no pain than we changed insurances at work and new dr. doesn't see need I have been without for 3rd week my symtoms have started to come back in wrist and fingers and one of my feet. I am so sad to know that it can come back. almost forgot how it felt to have this pain.
anyone reading this please try to get your dr. to give you cymbalta. it was wonderful. I am still going to get my new Dr. to prescribe it now that I remember the pain. Good luck to you You are all in my prayers. |
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