Graves disease

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Graves victim

Beckley, WV

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#1
Aug 7, 2012
 

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Does anyone on here know anything about the disabling and sometimes deadly condition called Graves disease? Is there a cure? Is it treatable and can it totally disable a person? I was diagnoed with it, combined with a brain tumor in the frontal lobe, had major kidney failure as a child, crippling arthritis, two herniated disks in my spine, among a multitude of other health problems. Radiation treatments for repeated cancers have left me weak. Am thinking about taking a few years off from work but I am only 60, does that make me a worthless lazy no good? I have worked for over 40 years, and never asked for any assistance. How many feel I would be a bad person if I just retire early or at least take a few years to rest? My doctor told me to quit work and enjoy life for a change but I worry about what so many will perceive me as milking the system. To look at me, I am a picture of health. Do you think people would judge me if I take an early retirement? I notice a few on here seem to think most disabled persons are scamming the system somehow. Be nice, just want an unbiased, honest opinion.
ugh

Beckley, WV

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#2
Aug 7, 2012
 

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Sorry to hear about all of your conditions, you've had it rough! Sounds to me like you deserve a break.

I've never heard of Graves. I'm sure there is some information out there, try Wikipedia, or WebMD.
XxXxX

Beckley, WV

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#3
Aug 7, 2012
 

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Graves disease is an autoimmune disorder that leads to overactivity of the thyroid gland (hyperthyroidism).
The purpose of treatment is to control the overactivity of the thyroid gland. Beta-blockers are often used to treat symptoms of rapid heart rate, sweating, and anxiety until the hyperthyroidism is controlled. Hyperthyroidism is treated with Antithyroid medications, Radioactive iodine or Surgery
If you have radiation and surgery, you will need to take replacement thyroid hormones for the rest of your life.. Graves disease oresponds well to treatment. Sumtimes thyroid surgery or radioactive iodine usually will cause hypothyroidism. Without getting the correct dose of thyroid hormone replacement, hypothyroidism can lead to:
Depression
Mental and physical sluggishness
Weight gain

I have never heard of anyone dying from Graves Disease

And with all u have goin on.. I very seriously doubt anyone will think bad of u for not working. I will b Praying for u..
mememe

Charleston, WV

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#4
Aug 7, 2012
 

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Graves victim wrote:
Does anyone on here know anything about the disabling and sometimes deadly condition called Graves disease? Is there a cure? Is it treatable and can it totally disable a person? I was diagnoed with it, combined with a brain tumor in the frontal lobe, had major kidney failure as a child, crippling arthritis, two herniated disks in my spine, among a multitude of other health problems. Radiation treatments for repeated cancers have left me weak. Am thinking about taking a few years off from work but I am only 60, does that make me a worthless lazy no good? I have worked for over 40 years, and never asked for any assistance. How many feel I would be a bad person if I just retire early or at least take a few years to rest? My doctor told me to quit work and enjoy life for a change but I worry about what so many will perceive me as milking the system. To look at me, I am a picture of health. Do you think people would judge me if I take an early retirement? I notice a few on here seem to think most disabled persons are scamming the system somehow. Be nice, just want an unbiased, honest opinion.
If your doc told you to quit working, quit working. Other people's useless opinions shouldn't bother you. If you don't feel able to work don't. Sounds like you did your bit and a lot of people never worked a day in their lives and collect their check and go home. Take care of yourself.
seek treatment

Beckley, WV

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#5
Aug 8, 2012
 
XxXxX wrote:
Graves disease is an autoimmune disorder that leads to overactivity of the thyroid gland (hyperthyroidism).
The purpose of treatment is to control the overactivity of the thyroid gland. Beta-blockers are often used to treat symptoms of rapid heart rate, sweating, and anxiety until the hyperthyroidism is controlled. Hyperthyroidism is treated with Antithyroid medications, Radioactive iodine or Surgery
If you have radiation and surgery, you will need to take replacement thyroid hormones for the rest of your life.. Graves disease oresponds well to treatment. Sumtimes thyroid surgery or radioactive iodine usually will cause hypothyroidism. Without getting the correct dose of thyroid hormone replacement, hypothyroidism can lead to:
Depression
Mental and physical sluggishness
Weight gain
I have never heard of anyone dying from Graves Disease
And with all u have goin on.. I very seriously doubt anyone will think bad of u for not working. I will b Praying for u..
Yes, many undiagnosed to die from Graves if it is left undiagnosed and untreated. The symptoms and related problems with rapid heartbeat, morbid obesity and high blood pressure it causes often kill people. Also, the statement that it is easily treated is incorrect. Doctors in the office where I work say it is the hardest dieases to keep medicine regulated because it requires monthly blood tests along with constant changes in medication levels. It is one of the hardest conditions to keep the medication regulated correctly. My mother had Graves and it is definitely a disabling, serious, unfortunate condition for anyone to suffer through. One month she would be fine and able to do a lot, the next month she would be in bed all month because her midicine needed to be adjusted. It is the period in realizing the medicine needs to be adjusted and the time it takes the body to re-adjust that causes the problem. Because the person with Graves can seem so healthy at times, people often think they are in perfect health and nothing is wrong. When a person with Graves is need of their medicine to be adjusted, there are days when they can barely walk. I feel so sorry for anyone who has this condition, but, I totally disagree, many have died from undiagnosed and untreated Graves. A doctor (specialist in the field at Duke) explained it to me as similar to one holding down the accelerator pedal on a car while the car is in park until the motor blows up. He said that is what Graves does to the heart if it is untreated. Sometimes by the time it is diagnosed, it has done irrepairable damage to the heart.
Graves kills

Beckley, WV

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#6
Aug 8, 2012
 

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XxXxX wrote:
Graves disease is an autoimmune disorder that leads to overactivity of the thyroid gland (hyperthyroidism).
The purpose of treatment is to control the overactivity of the thyroid gland. Beta-blockers are often used to treat symptoms of rapid heart rate, sweating, and anxiety until the hyperthyroidism is controlled. Hyperthyroidism is treated with Antithyroid medications, Radioactive iodine or Surgery
If you have radiation and surgery, you will need to take replacement thyroid hormones for the rest of your life.. Graves disease oresponds well to treatment. Sumtimes thyroid surgery or radioactive iodine usually will cause hypothyroidism. Without getting the correct dose of thyroid hormone replacement, hypothyroidism can lead to:
Depression
Mental and physical sluggishness
Weight gain
I have never heard of anyone dying from Graves Disease
And with all u have goin on.. I very seriously doubt anyone will think bad of u for not working. I will b Praying for u..
Your knowledge of such a disabling disease is very limited. People do die from Graves diseases if left untreated. I certainly hope you are not a health professional or ,because often a little bit of knowledge about a subject can be deadly. There are so many, much more serious problems, lack of treatment can cause. If you pulled your limited knowledge from the internet, find a page that is more informative. If you are a nurse or doctor, get educated, before you give out half baked advice about something you apparently know very little about. Graves is undetected in a lot of cases until it is too late. You are correct on some of the points, but so incomplete on others. Half baked information is worse than none. This is from a person who nearly died from Graves before it was disagnosed, and has struggled with medication dosage changes for several years. IT IS DEFINETLY NOT EASILY TREATED.
Thyroid Storm

Beckley, WV

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#7
Aug 8, 2012
 
XxXxX wrote:
Graves disease is an autoimmune disorder that leads to overactivity of the thyroid gland (hyperthyroidism).
The purpose of treatment is to control the overactivity of the thyroid gland. Beta-blockers are often used to treat symptoms of rapid heart rate, sweating, and anxiety until the hyperthyroidism is controlled. Hyperthyroidism is treated with Antithyroid medications, Radioactive iodine or Surgery
If you have radiation and surgery, you will need to take replacement thyroid hormones for the rest of your life.. Graves disease oresponds well to treatment. Sumtimes thyroid surgery or radioactive iodine usually will cause hypothyroidism. Without getting the correct dose of thyroid hormone replacement, hypothyroidism can lead to:
Depression
Mental and physical sluggishness
Weight gain
I have never heard of anyone dying from Graves Disease
And with all u have goin on.. I very seriously doubt anyone will think bad of u for not working. I will b Praying for u..
Unless you are a doctor or educated on a topic, please do not provide inaccurate information. MANY die from Graves Disease as a result of what is known as a "thyroid storm" which is a dangerously high metabolic rate. Google it. Posting uninformed info is not helpful. Pulling something from the net is not showing your "smarts" if it is incorrect or incomplete. A "thyroid storm" can happen even to a person under treatment, or who has undergone radiation treatments for Graves. To the person with Graves, keep a check on your condition, it is a serious and disabling one. My prayers are with you.
lol lol

Beckley, WV

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#8
Aug 8, 2012
 
XxXxX wrote:
Graves disease is an autoimmune disorder that leads to overactivity of the thyroid gland (hyperthyroidism).
The purpose of treatment is to control the overactivity of the thyroid gland. Beta-blockers are often used to treat symptoms of rapid heart rate, sweating, and anxiety until the hyperthyroidism is controlled. Hyperthyroidism is treated with Antithyroid medications, Radioactive iodine or Surgery
If you have radiation and surgery, you will need to take replacement thyroid hormones for the rest of your life.. Graves disease oresponds well to treatment. Sumtimes thyroid surgery or radioactive iodine usually will cause hypothyroidism. Without getting the correct dose of thyroid hormone replacement, hypothyroidism can lead to:
Depression
Mental and physical sluggishness
Weight gain
I have never heard of anyone dying from Graves Disease
And with all u have goin on.. I very seriously doubt anyone will think bad of u for not working. I will b Praying for u..
Graves is a very dealy and serious ailment. You downplay it s much with your limited knowledge. It causes death in so many cases before it is diagnosed, that the things you mentioned about weight gain, and sluggishness are small. In fact, over production of the thyroid causes weight loss, hyperactive and the opposite symptoms of too little thyroid production. Get your facts straight,
thyroid info

Beckley, WV

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#9
Aug 8, 2012
 
Graves causes strain on the heart and that it how it does so much harm.

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Since: Aug 12

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Aug 8, 2012
 

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Thyroid Storm wrote:
<quoted text>Unless you are a doctor or educated on a topic, please do not provide inaccurate information. MANY die from Graves Disease as a result of what is known as a "thyroid storm" which is a dangerously high metabolic rate. Google it. Posting uninformed info is not helpful. Pulling something from the net is not showing your "smarts" if it is incorrect or incomplete. A "thyroid storm" can happen even to a person under treatment, or who has undergone radiation treatments for Graves. To the person with Graves, keep a check on your condition, it is a serious and disabling one. My prayers are with you.
I, too have been a victim of a Thyroid Storm, which nearly took my life 10 years ago. My resting heart rate was 180, and I was in ICU for 2 weeks while the doctors worked to stabilize me and prevent my heart from literally blowing out, all the while working to get me on meds to treat my overactive thyroid. Six months into treatment, my thyroid was never controlled, so I received the radiation, and now I have a non functional thyroid gland. I take a thyroid supplement every day now, but, that radiation treatment saved my life. Don't ever tell a person with Graves Disease that it's minimal or inconsequential, or doesn't kill. I know for a fact it can and does.
One last thing, many people mistakenly believe that once the thyroid part of Graves Disease is taken care of, the Graves Disease is "cured". That couldn't be more wrong. There are other components of the disease that can still show up, such as the eye bulge.
To those of you with this disease, my heart goes out...
thyroid info

Beckley, WV

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#11
Aug 8, 2012
 

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OneCoolHipster wrote:
<quoted text>
I, too have been a victim of a Thyroid Storm, which nearly took my life 10 years ago. My resting heart rate was 180, and I was in ICU for 2 weeks while the doctors worked to stabilize me and prevent my heart from literally blowing out, all the while working to get me on meds to treat my overactive thyroid. Six months into treatment, my thyroid was never controlled, so I received the radiation, and now I have a non functional thyroid gland. I take a thyroid supplement every day now, but, that radiation treatment saved my life. Don't ever tell a person with Graves Disease that it's minimal or inconsequential, or doesn't kill. I know for a fact it can and does.
One last thing, many people mistakenly believe that once the thyroid part of Graves Disease is taken care of, the Graves Disease is "cured". That couldn't be more wrong. There are other components of the disease that can still show up, such as the eye bulge.
To those of you with this disease, my heart goes out...
May you be blessed. Problem with Graves is, even after the radiation treatment and the thyroid is literally burnt out, doctors will agree that it seems the illnesses and heath problem of a Graves victim are never ending. It is a far worse disease than any cancer, and most Graves victim later suffer from tumors, disabling allergies, cancers, high blood presure, kidney ailments, weak bones, and so many other connected diseases. Graves is far worse disabling than cancer, losing any combination of limbs or the use of limbs, blindness, or anyother thing a person might consider the worst of being handicapped. With Graves, it never ends. You go back to work for a short while and then wait "for the other shoe to drop" with worry about what you will need another surgery for or another treatment for. The effects of Graves are far from minimal or inconsequential. Unlike other types of cancer that go into remission or completely go away, Graves is always there, always causing its victims pain, suffering and disability. Another problem is, one week you look like the picture of health and look like you are perfect, the next week you are bedfast, you can't pick and choose which week you will feel good. Anyone who minimalizes or candy coats the effects of Graves has never really known a sufferer or is very uneducated about the disease. My prayers are with anyone who has suffered Graves and a thyroid storm. You learn to celebrate each day of life thereafter. You take full advantage of the good days. I have suffered through many illnesses including cancer, but none of them affected me the way Graves has.
clueless

Beckley, WV

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#12
Aug 8, 2012
 
XxXxX wrote:
Graves disease is an autoimmune disorder that leads to overactivity of the thyroid gland (hyperthyroidism).
The purpose of treatment is to control the overactivity of the thyroid gland. Beta-blockers are often used to treat symptoms of rapid heart rate, sweating, and anxiety until the hyperthyroidism is controlled. Hyperthyroidism is treated with Antithyroid medications, Radioactive iodine or Surgery
If you have radiation and surgery, you will need to take replacement thyroid hormones for the rest of your life.. Graves disease oresponds well to treatment. Sumtimes thyroid surgery or radioactive iodine usually will cause hypothyroidism. Without getting the correct dose of thyroid hormone replacement, hypothyroidism can lead to:
Depression
Mental and physical sluggishness
Weight gain
I have never heard of anyone dying from Graves Disease
And with all u have goin on.. I very seriously doubt anyone will think bad of u for not working. I will b Praying for u..
Your comment looks like you googled Graves, partially read the info, downplayed what you read, and then you attempted to minamalize what little bit of info you retained. Please, when someone is asking for information or help, even for support on such a serious subject, don't try to show how smart you are NOT by doing what you did. Graves is one of the most deadly, disabling diseases and if you ever have a child or relative who goes into thyroid storm, you will realize that. Your statement "I have never heard of anyone dying from Graves" tells me you know very little about the subject. Next time, either do a little more research or don't comment at all, before you feel the need to trivualize such a serious illness. It just makes you look stupid or cruel, whichever applies. Guess what? I am having a really bad day today.

Level 3

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#13
Aug 12, 2012
 

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clueless wrote:
<quoted text>Your comment looks like you googled Graves, partially read the info, downplayed what you read, and then you attempted to minamalize what little bit of info you retained. Please, when someone is asking for information or help, even for support on such a serious subject, don't try to show how smart you are NOT by doing what you did. Graves is one of the most deadly, disabling diseases and if you ever have a child or relative who goes into thyroid storm, you will realize that. Your statement "I have never heard of anyone dying from Graves" tells me you know very little about the subject. Next time, either do a little more research or don't comment at all, before you feel the need to trivualize such a serious illness. It just makes you look stupid or cruel, whichever applies. Guess what? I am having a really bad day today.
I hope you're having a better day today, and I so appreciate you and Thyroid Info for helping set the record straight with this pathically uninformed individual. I hesitate to use the word ignorant, but that does mean lack of knowledge, I guess it's appropriate.
I wish you, Thyroid Info, the Original Poster, and any else dealing with this disease all,the best. You have my heart felt blessings.

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#14
Aug 13, 2012
 

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Graves Disease is so easy to treat now, it literally means only a couple of visits to the endocrinologist. The treatment is to test your blood to see what levels your thyroid hormones (there are two) are currently hitting, then they do a quick scan of your neck to see if there are any goiters or nodules. Then you get radioactive iodine in the form of a pill. Then you get quarantined for about a week, 10 feet distance from husband or wife, no sleeping together, no pets in the home, and you must keep everything as clean as possible. Oh, and while your hormone levels are going down to a normal level, you will have mood swings, hot flashes, won't sleep, your nerves will be shot all to hell, and generally you will hate everyone and yourself! Don't be alarmed when this happens, it is normal!

It also ends when your thyroid quits working entirely and they put you on Synthroid and get your dose correct. You'll feel like a new person then.

Sorry you have this, I know many who have, both friends and family, and no one I know has ever died from it...you're going to be fine! Best of luck!

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Aug 13, 2012
 

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Walking In Willows wrote:
Graves Disease is so easy to treat now, it literally means only a couple of visits to the endocrinologist. The treatment is to test your blood to see what levels your thyroid hormones (there are two) are currently hitting, then they do a quick scan of your neck to see if there are any goiters or nodules. Then you get radioactive iodine in the form of a pill. Then you get quarantined for about a week, 10 feet distance from husband or wife, no sleeping together, no pets in the home, and you must keep everything as clean as possible. Oh, and while your hormone levels are going down to a normal level, you will have mood swings, hot flashes, won't sleep, your nerves will be shot all to hell, and generally you will hate everyone and yourself! Don't be alarmed when this happens, it is normal!
It also ends when your thyroid quits working entirely and they put you on Synthroid and get your dose correct. You'll feel like a new person then.
Sorry you have this, I know many who have, both friends and family, and no one I know has ever died from it...you're going to be fine! Best of luck!
You my friend are so sadly mistaken. I WISH it were as treatable as a few trips to an endocrinologist. For some, maybe, but others, suffer for life. And if you read my earlier post you would know, as per my endocrinologist that just because the thyroid no longer functions, the disease DOES NOT go away. I have to undergo yearly checks for my eyes and many other components of the disease.
As you stated, you have second hand knowledge of the disease, you don't have it. Don't evere tell someone who nearly died from it, "It's easy to treat",(it's not) and "no one dies from it", because they do.
thyroid info

Beckley, WV

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#16
Aug 13, 2012
 
Walking In Willows wrote:
Graves Disease is so easy to treat now, it literally means only a couple of visits to the endocrinologist. The treatment is to test your blood to see what levels your thyroid hormones (there are two) are currently hitting, then they do a quick scan of your neck to see if there are any goiters or nodules. Then you get radioactive iodine in the form of a pill. Then you get quarantined for about a week, 10 feet distance from husband or wife, no sleeping together, no pets in the home, and you must keep everything as clean as possible. Oh, and while your hormone levels are going down to a normal level, you will have mood swings, hot flashes, won't sleep, your nerves will be shot all to hell, and generally you will hate everyone and yourself! Don't be alarmed when this happens, it is normal!
It also ends when your thyroid quits working entirely and they put you on Synthroid and get your dose correct. You'll feel like a new person then.
Sorry you have this, I know many who have, both friends and family, and no one I know has ever died from it...you're going to be fine! Best of luck!
You, my friend, are either very. very IGNORANT (and I mean that in the most literal way), or you know someone with Graves and want to downplay it minimalize it because you hate them. If you really know as much as you pretend you know, you would surely not tell someone Graves is so easy to treat. Ask any endocrynologist, and he will tell you, it is very hard to keep the dosage regulated. Any CREDIBLE doctor will tell you that if you go into thyroid storm because the dosage is slightly off, you can die, to get to the emergency room quickly. Graves requires monthly, sometimes twice monthly blood tests, and constant monitoring of possible symptoms. For you to play it off like it is easy to treat, and no one ever dies from it makes YOU look very stupid indeed. Anyone can google thyroid storm and see that people have died from thyroid storm, from improper diagnosis which will eventually causes their heart to literally explode, or from medication being withdrawn or improperly administered. Even your information that the radiation is administered in a pill form is incorrect. You make the radiation part sound like a walk in the park. The radiation is administered in a liquid form which you are placed behind a heavy steel cage away from the person that is administering it, you wear a heavy layer of protective gear during the radiation. The effects of the radition are horrendous for weeks, and you feel like you might die if you have a reaction to it. People who are far from a doctor and get their limited knowledge from some dated website are pathetic. Why you are downplaying a very serious, DEADLY, disabling disease is beyond me, but you clearly showing that you are a very, very ignorant person, who has never known anyone who went into thyroid storm or had full blown Graves. I fail to see why you want to appear so stupid to anyone who googles "thyroid storm and possible deaths". Google it people, then you will see how ignorant this person is about such a sad disease. Those with Graves will NEVER, EVER, be "FINE" as you put it. Instead they will have to live with the never ending ups and downs and be dependent on how well the dosage of medicine is working on a particular day, or how well their health professional reads the results of the blood test. A slight mis judgement can mean days or weeks in bed. I feel so bad for you that you have made yourself look so stupid to anyone who really knows a person with Graves or who has it themself. To persons with knowledge, you look more than ignorant, you make yourself look plain stupid. I feel sorry for you because I can tell by your post, it is really important to you that people think of you as informed and intelligent, but you make yourself look plain stupid. The "you will be fine" is what got to me. Fine, if you call feeling like you are 90 at age 32.
Graves sufferer

Beckley, WV

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#17
Aug 13, 2012
 
OneCoolHipster wrote:
<quoted text>
You my friend are so sadly mistaken. I WISH it were as treatable as a few trips to an endocrinologist. For some, maybe, but others, suffer for life. And if you read my earlier post you would know, as per my endocrinologist that just because the thyroid no longer functions, the disease DOES NOT go away. I have to undergo yearly checks for my eyes and many other components of the disease.
As you stated, you have second hand knowledge of the disease, you don't have it. Don't evere tell someone who nearly died from it, "It's easy to treat",(it's not) and "no one dies from it", because they do.
Graves is a deadly disease that requires radiation treatment and life long close monitoring. MY mother died from the effects of Graves Disease because her heart became so enlarged from the effects of the disease. It literally causes the heart to beat and work twice as hard if it goes untreated. Not all doctors are qualified to treat it, only specialist in the field. Don't let some nutcase that wants to show how smart they are not, downplay it. If they claim to have a lot or relatives that have Graves, or that it is easily treated, they are a liar. Perhaps in their stupidity, they are confusing a simple thyroid disorder with Graves. I can't imagine anyone being that stupid about Graves. Good luck to you, life is so much harder when you never know what or how you will feel the next day.
Graves sufferer

Beckley, WV

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#18
Aug 13, 2012
 
OneCoolHipster wrote:
<quoted text>
I hope you're having a better day today, and I so appreciate you and Thyroid Info for helping set the record straight with this pathically uninformed individual. I hesitate to use the word ignorant, but that does mean lack of knowledge, I guess it's appropriate.
I wish you, Thyroid Info, the Original Poster, and any else dealing with this disease all,the best. You have my heart felt blessings.
I agree with you. The poster saying people with Graves "will be fine" needs a good ole fashion butt kicking. Only those of us who have underwent radiation with a lead wall between you and the pereson administering it, suffered the effects of the radiation for weeks, and know how frustrating it is when the dosage gets out of whack, realize how terrible this disease is. If fine is not knowing what days you will be able to function, drive, even get out bed, is "fine", then I guess so. The person who posted that comment made themself look very very stupid, yet they were trying so hard to look intelligent. Makes me feel sorry for them because being such so obvious that they need to others to think of them as smart, to make themself look so stupid and uninformed is pitiful.
Get edumacated

Beckley, WV

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#19
Aug 13, 2012
 
Walking In Willows wrote:
Graves Disease is so easy to treat now, it literally means only a couple of visits to the endocrinologist. The treatment is to test your blood to see what levels your thyroid hormones (there are two) are currently hitting, then they do a quick scan of your neck to see if there are any goiters or nodules. Then you get radioactive iodine in the form of a pill. Then you get quarantined for about a week, 10 feet distance from husband or wife, no sleeping together, no pets in the home, and you must keep everything as clean as possible. Oh, and while your hormone levels are going down to a normal level, you will have mood swings, hot flashes, won't sleep, your nerves will be shot all to hell, and generally you will hate everyone and yourself! Don't be alarmed when this happens, it is normal!
It also ends when your thyroid quits working entirely and they put you on Synthroid and get your dose correct. You'll feel like a new person then.
Sorry you have this, I know many who have, both friends and family, and no one I know has ever died from it...you're going to be fine! Best of luck!
You are very ignorant of this deases so that tells me you are a liar about knowing many with it. My doctor told me "it is one of the hardest diseases to treat, because the levels are so finite and delicate, and when the medicine levels are off, the whole body is disrupted". I guess you know more than a doctor, NOT. Get educated and sstop the lies, it makes you look bad to those who really know, or those who are intelligent about the effects of the dieases. Oh, and by the way, the radiation is not administered in a simple pill, it is usually a liquid form and done with close monitoring by doctors and has to be done in a hospital, cancer center, or health office, and like I said, closely monitored for hours after the radiation. The radiation alone is something terrible to endure, and the months afterwards are a nightmare. Get some education of just don't post. I are far from fine, and will never be the same.
Get edumacated

Beckley, WV

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#20
Aug 13, 2012
 
Walking In Willows wrote:
Graves Disease is so easy to treat now, it literally means only a couple of visits to the endocrinologist. The treatment is to test your blood to see what levels your thyroid hormones (there are two) are currently hitting, then they do a quick scan of your neck to see if there are any goiters or nodules. Then you get radioactive iodine in the form of a pill. Then you get quarantined for about a week, 10 feet distance from husband or wife, no sleeping together, no pets in the home, and you must keep everything as clean as possible. Oh, and while your hormone levels are going down to a normal level, you will have mood swings, hot flashes, won't sleep, your nerves will be shot all to hell, and generally you will hate everyone and yourself! Don't be alarmed when this happens, it is normal!
It also ends when your thyroid quits working entirely and they put you on Synthroid and get your dose correct. You'll feel like a new person then.
Sorry you have this, I know many who have, both friends and family, and no one I know has ever died from it...you're going to be fine! Best of luck!
If you "have both friends and family with Graves, then you are surely aware of the double vision, irregular heartbeat, fatigue, and so many other things that go along with Graves far after the radiation. You come across as a "know it all" jerk to me, but worse you come across as a liar. If you know so many with Graves, you would never say they will be fine and that it is easy to treat. Liars are the worst, because people who know the truth and live with Graves, know they will never be "fine". You need some knowledge knocked into that head. No person who has had real Graves is ever "fine" again. I spent the weekend bedfast, because my levels were off for a couple of weeks. I am in a terrible state of mind today as a result, and people like you just irritate the hell out of me. Seems there are a couple of others who know what I mean on here, may God bless you all with a few good days. Ignore the ignorant.

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